Welcome to Alzheimer's & Dementia Disease
 

I want to wish a warm welcome to everyone that comes thru that door.

I want to thank Dr.John Grohol for opening these forums and has been so very generous with his time and caring.

I also want to thank all those who helped get the word out about this forum.

Alzheimer's and Dementia are 2 Disease's that work much the same and they are both heartbreaking for family & patient.

some helpful sites, but we don't want the whole forum filled with sites and no room for those that need to talk things out, share and be helpful to each other.

These are "Family Diseases". It effects everybody around them. I hope you won't be shy, just enter talking .:)

Lets get started and make this a good forum for all who enter. I'm JoJo, some know me as Julia, call me which ever but I go by JoJo mostly her on the forum.

((((Jo)))))

how like you to put out the welcome mat :)

I may need to start learning here as we are beginning to suspect that my MIL, whom I have spoken to you of before, has early senile dementia:(

thanks again for being the special caring person that you are Jo.

Thank you dear Chemar. I'm sorry your MIL, yes, I remember us discussing. I'm sorry there are difficulties, but it is so very subtle sometimes. Is Chemar taking care of Chemar? You know already first hand about caregiving, maybe in different ages, but it covers it all. I hope all else is well on the home front.

Anytime you need to ask questions, just ask you and we'll let YOU look up the links and such:p

Good to see you , welcome to our humble abode:confused: still can't spell. lol

My love, Jo

Hi Gang,

I normally hang out in the Celiac Disease/Gluten Sensitivity Forum, but I may be taking a peek in here from time to time. My wife has just started a new job. She is working in a neurologists office [in a non-medical capacity] that specializes in Memory [Alzheimer's & Dementia]. She brought home some articles that I thought might be helpful. I have posted the links on other threads.

FYI - I know next to nothing about AD or dementia, but I suspect I'll be learning lots by osmosis :)

Hi Al, its good to meet you:) lote post, gremlins ate post, lol

I hate to sound so dense, but what is Lew-Bodies? Jo

Hi Jo,

I realize I am an outsider here, so I'm trying to tread lightly. I have no one currently that I am caring with for with AD [although my Mother can be a handful at times - but that's a whole 'nother story :)]. If my posts are out of synch with the way this forum functions - please forgive me. I am not here to cause trouble.

I can understand fully how terrible it is to deal with dementia. I suspect most people have known someone that has wrestled with this. I know from my own medical mysteries, the more you learn about something, the better you are able to deal with it. This is my attempt at offering some information that some might find useful.

Again, if I have crossed over the line, I apologize.

Take care!

of course you are welcome!!
 

Al, those 2 statements was not "don't post"!! I am sorry you took it that way, but believe me, we all need all the help we can find.

If you will bear with me here I'll try to explain what I posted. In the OBT we had about 6 members that had either LO's to care for . We we were not able to post everyday because we had no time to stop and look into the forum. If we had a few min, most of us did stop by to check on the others.

There was a BT member, but I don't think he suffered Alzheimer's. If none of us would miss posting just 1 day he would have page after page etc. the board would be full of what if's and studies, many outdated for 1990's.

When the group did get back together if was hard to find any space for the members to talk. Taking care of people with these 2 diseases is hard and also heartbreaking. We shared how all the patients were etc. Someone would have a question about the legal side of things, wanted to know how to handle this. Most times someone had already been thru this, but it sure is frightening for all these things to fall on you suddenly.

That kind of thing was why I posted what I did. I'm not good at explaining things and I have read your post in others things and I felt you could be a good supported, esoecially since your wife works with these patients. Believe me, it will come home with her some days. It takes someone special to even atempt working with the AD & D patients.

We all want all the info we can find, but we don't always have the time to sit down and go through things. there is nothing wrong with you posting things.

I read your post that night and I thought then you would make a fine example for others that aren't trying to deal with, hands on, that extra little bit of news we all pray and hope for.

So AL, I truely am sorry it came across that way to you but if you are willig to take the time it would be mosst helpful for you to take care of the "new news" side of things. Wou;d that be a do-able?

I apologize again and want you are anybody else to know I mean no hard to anybody. I will come backk later. Hubby is calling. thanks AL

Hi Jo,

Whew!! I'm glad I didn't do anything wrong :) Thanks for your explanation. No need to apologize - I was not offended. I just didn't want to be causing trouble in a place that trouble is definitely not needed!!

I fully understand about not having the time to read all the posts. The CD/GS board is quite active, and can't always keep up.

As I said, I won't be here a lot, but I may peek in from time to time and relay any tidbits of medical research that Peg brings home.

Al, of course you haven't done anything wrong! I thank you for posting. You peek in anytime you want, I may be the only one here:p

Thank you and thank Peg for me too, Julia

When I said Alzheimer's and Dementia were "family diseases" I meant they affect the whole family, from parents down to the youngest, especially if mom is the caregiver. It's very hard on children to cope with a LO that does not remember from 1 min. to the other who they are, much less the grand kids.
Al, just because one ages doesn't mean they start falling all the time. Patient Abuse in Nursing Homes are a great concern for family as well as patient advocates. I don't know how it is in other states, but the state I live in have services that visits NH without prior notice.

I'm not picking on you Al. those are just facts. We also read everything we could find our hands on and yes MRSD, I do know the internet has a mulitude of info just at out fingertips.

I don't know everything, but I have not been sitting on my thumb all these years waiting for someone to find a cure for these diseases. There are many things I would like to address, but if no one here has a need for it my time would be better spent other places.

Several times MIL got broken bones from abuse, whether it was the staff or another patient., abuse is abuse! The 1st NH MIL was in, the one where a patient pushed her hard enough to cause her to fall backwards & fracture her skull, we never took her back to that NH. WE moved her the day she was out of the hospital.

She entered the 2nd NH with all her records, including the ones she had from the fractured skull. The staff were well aware Why she had these injuries. BTW, we got her into this better staffed NH because we had already been looking for one.