NeuroTalk Support Groups - TOS, RSI, and Neuropathy

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- - TOS, RSI, and Neuropathy (https://www.neurotalk.org/thoracic-outlet-syndrome/88042-tos-rsi-neuropathy.html)

TOS, RSI, and Neuropathy

Hi Everyone:

I posted in the PN forum, but maybe it's more appropriate here.

I'm a long time TOS sufferer. I had surgery in December on my left side with some improvement. I had the pec minor release last September with pretty good results. At the time of my surgery, I started having numbness in my feet. Dr. Sanders said there was no connection.

Since then, the numbness has turned to pain and worked it's way up to my knees and lower legs. So now I have TOS and was diagnosed with peripheral neuropathy by my GP.

I'm wondering if anyone feels there is a link between repetitive strain injury and peripheral neuropathy? I'm aware of the link between RSI and TOS.

I was planning to have the surgery on my right side, but Dr. Sanders has retired. At this point, my nerves seem so fried I'm not sure what will help....

Well, I guess it could be connected because we're one being, but you could also have two different and distinct problems. Neuropathy is painful in and of itself, and independent most times.

I'm so sorry your have that and TOS to deal with. It's double trouble for sure.

I hope you find some relief.

(Broken Wings)

Quote:

Originally Posted by sunnydee (Post 516191)

I believe there is a connection, it happened to me, and if the nerves at the cervical level are damaged and misfiring or trying to find new routes in the brain, I do NOT understand why the docs insist there is no correlation.

It feels like I have tournequets at my wrist, elbow, underarm and above shoulder...so if those are "off" and damaged, why would they not have an affect as a whole on the body???

I get really tired of the docs - I've seen 36 now, and all but a few know anything about this rare condition.

But Dr. Annest in Denver did my surgery, and there are other docs listed on our doc thread above, so check out a few for consults, ok?

Don't give up.

I am bed-ridden and live in horrific pain but at least my surgery in 06 stopped the constant headaches and the RSD only came back once (last month) so I think it helped. I'll take ANY improvement and say "thanks" for it!

God bless you.