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-   -   Im delusional (https://www.neurotalk.org/peripheral-neuropathy/237876-im-delusional.html)

Healthgirl 07-12-2016 02:56 PM

Im delusional
 
You know how when you get a cut and swim in the ocean it heals more quickly? Or when you have a sore throat and gargle with saltwater it kills the bad germs and numbs the pain?

Well, I'm pretending that eating and drinking salt all day in order to help my dysautonomia and low bp is going to "cure" me.

You know how many times I've done this already with different methods- each time thinking..."this might do it"?

Too many.
If I don't at least remain hopeful with this miserable condition, it would be over though, so I must keep on keeping on.

I'm still waiting for the genetics to get back to me on when they will take us.

JoannaP79 07-12-2016 04:40 PM

Quote:

Originally Posted by Healthgirl (Post 1216885)
You know how when you get a cut and swim in the ocean it heals more quickly? Or when you have a sore throat and gargle with saltwater it kills the bad germs and numbs the pain?

Well, I'm pretending that eating and drinking salt all day in order to help my dysautonomia and low bp is going to "cure" me.

You know how many times I've done this already with different methods- each time thinking..."this might do it"?

Too many.
If I don't at least remain hopeful with this miserable condition, it would be over though, so I must keep on keeping on.

I'm still waiting for the genetics to get back to me on when they will take us.

Hope is the most important thing in keeping people going. When there is none you can go downhill terribly. I feel there is no hope relating to my current state and am in the worst depression ever. Trying to now find hope in a situation where I have no control over the health decline. I'm still working on finding that!
I think you have the right attitude and it's good to be hopeful. The salt thing sounds interesting, I hope it does help in some way

Healthgirl 07-13-2016 08:03 AM

Quote:

Originally Posted by JoannaP79 (Post 1216905)
Hope is the most important thing in keeping people going. When there is none you can go downhill terribly. I feel there is no hope relating to my current state and am in the worst depression ever. Trying to now find hope in a situation where I have no control over the health decline. I'm still working on finding that!
I think you have the right attitude and it's good to be hopeful. The salt thing sounds interesting, I hope it does help in some way

I can only say that I know how you feel and I go in and out of that helpless feeling throughout the course of weeks or even in one day. Nervous system damage is horrific. I do feel that there is hope. Amazing things can happen. So far, as useless as the doctors have been for me, they have all seen cases where remission happened. I have to hold onto that.

ElaineD 07-13-2016 08:39 PM

This might help:

PLEASE PASS THE SALT… | The Dysautonomia Dispatch

Hugs. Elaine


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