Muscle fatigue
I would like to know if anyone has checked out myasthenia gravis. The more I read about it, the more it explains my "whole body" symptoms. Of course, I have to fight for pain meds.
I am finding that doctors are ridiculously closing their eyes to our situation, and our pain. IF you have any trouble breathing, this is a myesthenia gravis crisis symptom. It means our sympathetic system for breathing is not working. So you really need an advocate with you. And with TOS and MG, there is no such thing as "muscle strengthening" for us. Gentle walk. No work strengthening, or you're going to make yourself have some bad symptoms. If you can strengthen with no rebound, you might have something different from neurogenic TOS. The sad thing is that we are so unique, that we have to do our own research, and keep fighting. |
they mention autoimmune disorders so i thought id mention ehlers danlos syndrome (aka hypermobile) sometimes presents itself as being an autoimmune disorder even tho i guess technically it's not.
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Interesting
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Capricorn1,
are they having you do standard cookie cutter PT plans & strengthening before the symptoms are resolved??? Have you tried other PT places that might have more advanced therapists? They should not be trying to strengthen until symptoms are greatly reduced or resolved. Do they do any passive modalities for you at all?? like ultrasound IF stim or other electric stimulation ( low settings -nothing that makes your muscles tighten up, just a gentle buzzing that should feel good) low level laser is great for trigger points and specific spots of pain massage bio feedback posture work |
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What do you think my course of action should be? I really appreciate your help on this. I feel lost and confused. |
Capricorn1,
I'll make a new thread about how my PT sessions went, I thought we had a thread about it from yrs ago, but haven't located it yet. |
i swear by manual pt (where the the pt feels for adhesions etc) especially if you have scar tissue
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My Neuro wanted to rule this out because so many symptoms can be similar. He was more concerned with optical myasthenia gravis. My eye has a droop and I had double vision one layer over the other, not side by side. There is a medication that is used. If you feel better then that is the diagx. I did not have relief so myasthenia gravis was ruled out. The minimal use of valium as a muscle relaxant relieved the symptoms, or managed them. Hope you feel better. di |
TShadow
I pray you get some relief. You deserve it. Take care, my friend. |
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