My Mystery Symptoms
 

Greetings, I am joining this forum in an effort to discover more about my non-specific peripheral neuropathy, its potential causes, and any ideas about supplements or nutrition that might prove helpful in mitigating the symptoms.

My age: 65
Age at Onset: 57

My symptoms:

• constant tingling/numbness in my hands and feet that NEVER goes away. Also, sporadic numbness, tingling, and zinging on face. tongue, sometimes it even feels like my gums are tingling and numb.
• pins and needles that are random throughout body
• Zinging (feels like electrical charges) random all throughout the day.
  Sporadic internal tremors

Tests/Treatments
Nerve Conduction Test: Passed with the exception of slight carpal tunnel in hands. Given wrist supports to sleep in at night. No negligible difference.

X-rays: All clear, no pinched nerves indicated.

Bloodwork: Showed a slight deficiency in Vitamin B12. Took Vitamin B12 shots once a week for several months. No difference. Last bloodwork revealed no deficiency.

Acupuncture: Went to an acupuncturist for several months weekly. No negligible difference.do

Chiropractic Treatments: Paid for a series of treatments. No difference in symptoms.

Lyme Disease Test: Negative

My first neurologist visit was in 2013. I am scheduled for a new round soon.
My first diagnosis was non-specific peripheral neuropathy. For the last seven years, symptoms have remained constant but have not escalated. The past six months, I am now seeing an increase in severity and strength of symptoms.

They are with me constantly. And when I am up and moving about, I am able to "deal" with them. But when I am stationary or trying to go to sleep they are in high gear and I often can't sleep for hours. I have been taking a small amount of edible THC gummies and they help me sleep but do not help with the symptoms.

Other things to know about me: I lived in the jungles of Belize from 2006-2013. I have wondered if my symptoms are the result of a tropical parasite or disease. I have been tested for Chagas disease, a well-known tropical disease and tested negative for that.

Any suggestions or others with similar symptoms?

Thanks for the opportunity to share.

JudyNDJungle

Welcome JudyNDJungle. :Wave-Hello: Someone will be along.

Actually--
 

--doesn't sound like you've had that extensive a work-up, overall.

See:

An Algorithm for the Evaluation of Peripheral Neuropathy - American Family Physician

Quest Diagnostics: Test Directory

Welcome, JudyNDJungle!

I wish I could be more helpful but all I can say is that if I were you, I'd take a very close look at any meds I'm taking first of all. I'd look them up and see what their possible side effects are. Then I'd try eliminating any that might be contributing to my symptoms.

I'd also look carefully at my diet. I might consult a nutritionist or at least make sure I'm tested for dietary imbalances.

You may have gone this route a long time ago but that's all I can suggest. I hope you'll be able to find some answers soon.