I'm new and want to say thanks
 

Hi to you all,

So glad I found this site, it has been my saving grace.

This is my first post, so forgive me if I ramble a bit. I was diagnosed in Aug last year with PCS, after a blow to the head at the begining of June. Symptons didn't show untill 2 weeks after.

Started having panic attacks and feeling weird, went to Dr. who said it was migraine and that my neck was stiff and to get a massage.
At the time I had forgotten about the accident so did not associate the symptons with a bang on the head.

Any way to cut the story short symptons persisted and got worse, after many trips to Dr and A & E hey presto PCS.!!

Well I did not think in my worse nightmare that anyone could feel so bad, and trying to explain to friends and family how you are feeling was very difficult.

I paid privately to see a nuerologist in Sept. who checked me out but basically said I was typically suffering from Post Traumatic Migrain with Aura, which is common after a trauma to the head. And if symptons persist then medication would help.

So here we are 7 months on and I have only taken a few meds in the begging, as not keen on them, I seem to feel worse after taken them. I did go for some cranial massage in the begining, but that seemed to induce my headaches more, so stopped after 5 sessions.
I have been following this site since my diagnostic back in Aug. and just to know there are others with similar stories made me feel immediately relieved, and have found it so helpful,
I dont think I rested enough at the start and as I work from home running a Boarding Cattery, summer was our peak time , so in the end I had to take on a lady to help me.
Anyway things seem to be improving I'm almost back to me again.. and its all down to you wonderful caring people with your words of encouragement and advise and support. I could not have done it other wise.
The Dr just seem to want to give you pills no one seems to be able to give any follow up care.
I noticed one of the guests wants to start a support for PCS sufferers, well I think that would be absolutely amasing thing to do

I now rest twice a day, eat a very healthy diet, with fruit veg lots of water, I now know when I need to rest, I donot muli task, I limit my Iphone/computer/reading.
Although I have some new glasses coming with tinted lenses, so hoping they will help,
Its all very hard but you soon get into routine.
I do yoga twice a week and zumba once a week and have reflexology onec a month. all of which have helped immensely.

For my anxiety I was having what we call I Talk, which is run by the nhs and and you get to talk on the phone each week to a professional therapist/wellbeing officer,and it was invaluable. Also my family and friends have been a great help and understanding, so am very lucky.
Gosh I have rambled on. But I know its not over yet, I;ve still a long way to go....


C :)

So glad you are on the mend. Until you suffer it PCS is so difficult to describe to those that haven't experienced it

Your perseverance seems to have paid off. In the UK, medical procfessionals take so little notice of head injuries - unless you have a life threatening injury

All the best

Learning to rest is hard. I havent mastered listening to this new me yet. Sounds like you've found a routine. Best of luck and healing to you!

Welcome here! Thanks for posting! :)

Looking forward to seeing you around the forums!

Thank you for your positive replys.Much appreciated.

Sospan, you are right about UK, unless it is life threating they seem not too bothered. unless you pay privately, but thats not always an option.
you sound like are on the mend also, I wish you well, you were lucky to see a good neurologist, although it was a years wait.!!!! I hope you Continue on this way and its good not to take meds.

Missingme, I know how you feel, It was hard for me to learn to rest, as being a bubbly person to suddenly a withdrawn person, hit me like a brick wall... The hardest thing was having to let someone run my Cattery and do what I LOVE doing, and wondering if I would ever do it again. But you have to have hope and strenght, and patience, as this recovery is like two steps forward and one back. I found yoga was the best thing to help me focus on relaxing and watching Seinfeld, found that the best....

I see you are doing computer test, I'm sure you will master it, i found just doing little and often helps, try not to give yourself too much at once, break it down into manageable parts to start with then go from there. Remember its not a race. I can now run my Cattery again, after 7 months and the new me just takes her time and enjoys it.

my best wishes to you all in your recovery..

I CAN, I SHALL and I WILL............
C

Welcome to the forum. I am new here too and glad to be here.
It is great that you already making positive progress.
I couldn't get over the idea of the Dr. You went to did not ask you about a head or any other injury before telling you it's migraine and suggesting a massage when you told him you were experiencing panic attacks etc.

Best of luck to you and all of us here.:winky:

Hi Savas,
Thanks for that. yes this site has been so helpful and its nice know we are not alone in this. You will find lots of help and good advice here.
yes my Dr not good bed side manner..
Thankfully I choose another female Dr who was very understanding, and now i see her.
How are your symptons and what is your progress like ?
May I wish you a good recovery

Cx

Me too
 

:grouphug:

I have been sick going on a year March 25th and when I am well enough to read I come here first. all of you sharing helps me feel not so crazy. At first I felt so alone and thought I was going insane.

Thank you