Joined New Years Day, suffer from CRPS
 

Hi, just joined, new years resolution. I really need contact with others who suffer from CPRS. Pain began on April 4th of 2011, 7 doctors later......you know the usual pattern. Eventual diagnosis made strictly on clinical findings. Of course, all those tests were unnecessary. Oh my LEFT FOOT, life has become about this extremity. Used to wear a size 8, now I can wear nothing. Ugg slippers are OK, but what happens when it starts to snow?
Heard that this is reversible, sometimes spontaneously, anyone know anyone who had this happen?
Going on my 5th sympathetic nerve injection, taking lyrica, and going to physical therapy. Meds don't seem to help. Injections help some and then wear off. Actually, remaining idle seems to make pain recede. Doc says, "got to keep moving that foot"
Read and read and read about this disorder, seems like a very unfortunate one to get, not certain how I got it.
Any innovative ideas about pain and shoes? Top of foot is on fire, so any shoe seems to touch there. Love ladies boots, now they are in fashion and cannot get one on.
No one in my family understands at all. Man after working I am still standing. Asked my husband to help with laundry? Looked at me like I had 3 heads. Empathy is hard to feel from others when no one knows what you are talking about!

Nice to meet you!!
 

Happy to see you have come to be with us, it a wonderful place to come, hello and Welcome. As you can see we have a great number and caring fellow members here, just let us know how we can assist, you will see we are a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Check into the following forum:

http://neurotalk.psychcentral.com/forum21.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene :hug:

Hello Lucky853!
 

Welcome to NT!

This is a great place to be for support and understanding! The folks at the RSD/CRPS forum are wonderful....make sure you check out the good info at the top of the forum called "Sticky's"

I was amazed at how many others suffer from this painful nightmare

It's so great to have you!

Caring,
Rae
:grouphug:

Hi, lucky853:

First, my RSD (CRPS) was only in my left leg (including the thigh, knee, calf, ankle, and foot). Now, it is generalized and has started attacking some of my internal organs.

In the past, I used to not be able to wear a shoe on my left RSD foot. My pain management doctor suggested I put some lidocaine patches (Lidoderm 5%) on the most painful areas of my foot, then wrap my foot in ACE bandages so nothing could touch it. I would wear a large sock over the ACE bandage and then, I could wear my sandals (Reef type), which I prefer because I can adapt them to the size of my RSD foot (sometimes, it is big because it is swollen; sometimes, it is big because of the Lidoderm patches, ACE bandages, and sock). Of course, everyone is different and what works for me might not work for you, so you have to talk with your pain management doctor and try different things until you find something that helps you. It takes a lot of courage and patience, but what other choice do we have, us, RSD patients?!

Good luck to you and welcome to this forum.