MG/Social Security Disability
 

Hey all. I have found this site extremely helpful as far as understanding my Myasthenia Gravis. I was diagnosed Aug of 2008. At that time I had ptosis in both eyes, could not swallow, breathing problems, weak arms legs and problems falling. My Neuro told me what I had and started me on Mestinon and Cellcept as I am a type 2 diabetic. He said he thought he could have me pretty much back to normal in 6 months.
In Oct I had IVG treatments as I was not making progress, and Thanksgiving week I was going up steps,got to 3rd step fell backwards onto concrete carport, was knocked unconcious, entobated, and flown by air to a trauma ICU unit where I spent 4 days.
I have fallen several times since then, still have trouble walking,slurring words, eyes still close when typing,reading,watching tv. I cannot get myself out of tub due to muscle weakness(Now bathe on a chair) cannot get up off of floor or if I fall by myself. From Aug-Dec I was only able to work enough to earn $2,100.,and in Jan filed at my Drs. suggestion for social security disability. As I have been told by others, I like 95% of Tennesseans was denied, and I have hired attorney and appealed decision. He says SS will probably turn me down again, but there was no doubt I would get it when the case went to a judge,
My Neuro has seen me about every 3 months since the diagnosis and has changed my dosage each time. Is this normal? Any suggestions from others would really be appreciated. I thought I would be back at work and somewhat normal by now but am nowhere near it.

I can't speak on the issue of MG treatment, but....no offense........it sure sounds to me like you are disabled !

Documentation is key. If your neuro's initial documentation implied that you would be almost good as new after treatment, that could have hurt your case. Documentation really needs to focus on what you can not do.....ie, instead of writing you've had several falls, writing that you need assistance to bathe and need assistance with all ambulation. It'll be hard for SSDI to expect any employer to hire someone to help you walk just so that you can work.