New Meds for my ET
 

I went to see the neuro yesterday and she has put me on a new medication, topamax. She thinks it'll be good for my tremor as well as my migraines.

She has me on a very low dose, since I've had a hard time becoming accustomed to my previous meds (primidone and inderol).

Has anyone else been on this? What have been your experiences?

Hi :) i was cut off from caffeine and anything to take away migraines (id previously taken excedrin) for three wks in between neuro appts and was given 2000 mgs of a steroid called solu-medrol tru an IV and told to start 100 mg of topamax @ night immediately as well. he told me that i would have an insane appetite and gain at least five lbs immediately so to watch how much i ate. however, i had no appetite at all. in fact at my checkup aftter 3 wks..id lost four lbs. the nurse said 'ohhh you started topamax..that's normal..you're probably really tires too hih?' Which i have been. but she didn't know id also had tbat insane dose of steroid so that shouldve offset the weight loss and exhaustion. anyways, neurologist told me id still have migraines until the topamax worked into my system and i didn't!! I was shocked because i truly cut off caffeine (i wasn't a psychotic coffee drinker but i had a couple cups a day) he said the sterpid aided in that affect along with topamax. best of luck to u!!!

I'm on a really small dose. So far I've had a few side effects and I've lost a little weight. I feel like it has to be the meds because goodness knows I'm putting forth no effort into exercise or eating well, which means I blame the meds.

Anyway, I'll keep everyone posted on how it goes. I haven't seen any results yet, but it's been like...10 days?

I have been on all of them for ET - they were awful, I felt drugged up and they didn't help. I did it all! Until I discovered deep brain stimulation surgery. Miracle! If you are young enough and in good shape, consider it,