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-   -   DD16 Not Doing Well . . .Ideas & Thoughts Welcomed (https://www.neurotalk.org/the-stumble-inn/51765-dd16-doing-ideas-welcomed.html)

tkrik 08-09-2008 11:52 AM

DD16 Not Doing Well . . .Ideas & Thoughts Welcomed
 
I had to bring DD16 to the ER again for severe vertigo. I called her dr for a follow up appointment and he said that he believes there is something else going on and it is beyond his knowledge and she needs to see a neurologist.

She has severe vertigo, headaches, neck pain, blurred vision, nystagmus, and hand tremors. Additionally, she intermittently gets back pain and hip/thigh pain. As MSers, we all have it in the back of our mind. However, I have to look at other possibilities. So I thought I would ask you smart NT people for your thoughts.

I know that some migraines can cause all of these symptoms with the exception of back pain and hip/thigh pain. So migraines is not out of the question. The tremors come and go though and don't always happen with the headaches. The vertigo, this time, happened prior to the headaches.

All ideas, comments, etc. are welcomed and appreciated.

AfterMyNap 08-09-2008 11:57 AM

I used to get severe bouts of vertigo when I was a teenager/young adult too, Trish. We know how that ended up for me, but I hope it's just something that can be treated and fixed. Has she ever seen an ENT (Ear/ Nose/Throat)?

SandyC 08-09-2008 12:02 PM

Sending :hug: to you and your daughter that this is nothing very serious and can be fixed. I suffered from migraines as a teenager into my adult years and it was hormones for me. I had a hysterectomy and was fine around my early 30's.

I know it's hard being a mother and loved one. Try not to worry too much. :hug:

tkrik 08-09-2008 12:13 PM

Quote:

Originally Posted by AfterMyNap (Post 342654)
I used to get severe bouts of vertigo when I was a teenager/young adult too, Trish. We know how that ended up for me, but I hope it's just something that can be treated and fixed. Has she ever seen an ENT (Ear/ Nose/Throat)?

She hasn't seen an ENT yet. But I am sure that will be in the works unless the neurologist can do a ENG which to my understanding tests the vestibular nerve. I have put a call in the pediatric neurologist to schedule an appointment.

I never realized how debilitating vertigo can be. You become completely immobilized. I am sorry you had to go through that.


Quote:

Originally Posted by SandyC (Post 342657)
Sending :hug: to you and your daughter that this is nothing very serious and can be fixed. I suffered from migraines as a teenager into my adult years and it was hormones for me. I had a hysterectomy and was fine around my early 30's.

I know it's hard being a mother and loved one. Try not to worry too much. :hug:

Thanks, Sandy. Basilar migraines (hormonal starting in teen years) is something that I have considered. Even though her pediatrician dx her about a year or so ago with cluster headaches, this seems to be more than that as cluster headaches are rare and she doesn't have many of the other symptoms. She does have symptoms similar to familiar migraines with vertigo and essential tremors. But the three don't always occur together.

I too, naturally, hope it is something simple and treatable.

ewizabeth 08-09-2008 12:20 PM

My 27ish yo niece just went through something similar, but hers was definitely related to migraines. She also had the severe vertigo and she'd get numbness alternating with pain in her right arm and face. She missed a week of work because of the vertigo.

I also keep thinking MS with her, it's hard not to. So many of her symptoms mirror what I went through when I was younger.

Hopefully this will something minor for you daughter. If it is migraines, maybe they'll give her one of those preventative meds to take when she feels one coming on? That's what they did for my niece. Try not to worry too much Sweetie. :hug:

SallyC 08-09-2008 12:29 PM

Awww so sorry for DD16. I think that migraines can be a pecursor to MS, as was in mine and
DD's case, but sometimes it's just a Migraine problem.

Although, either way sucks, I hope your DD is the latter and can be cured. :hug::hug:

tkrik 08-09-2008 12:39 PM

Quote:

Originally Posted by ewizabeth (Post 342667)
My 27ish yo niece just went through something similar, but hers was definitely related to migraines. She also had the severe vertigo and she'd get numbness alternating with pain in her right arm and face. She missed a week of work because of the vertigo.

I also keep thinking MS with her, it's hard not to. So many of her symptoms mirror what I went through when I was younger.

Hopefully this will something minor for you daughter. If it is migraines, maybe they'll give her one of those preventative meds to take when she feels one coming on? That's what they did for my niece. Try not to worry too much Sweetie. :hug:

Your poor niece! :hug: I can see missing a week of work for something like this. DD had been on Valium and Antivert this past week. Yesterday was the 1st day she was up and doing more. She starts school on Monday so I am hoping that this will be all resolved by then.

Quote:

Originally Posted by SallyC (Post 342673)
Awww so sorry for DD16. I think that migraines can be a pecursor to MS, as was in mine and
DD's case, but sometimes it's just a Migraine problem.

Although, either way sucks, I hope your DD is the latter and can be cured. :hug::hug:

Thanks, Sally. I hope she is the latter too.

weegot5kiz 08-09-2008 12:41 PM

Trish you know you and your DD are deep in Debies and my prayers :hug:

Curious have they done blood work ups on her, anemic? I know deb some serious issues with this and it did give her a hard time with a few of your DD SX's, just a thought

hang in there mom

tkrik 08-09-2008 01:17 PM

Quote:

Originally Posted by weegot5kiz (Post 342679)
Trish you know you and your DD are deep in Debies and my prayers :hug:

Curious have they done blood work ups on her, anemic? I know deb some serious issues with this and it did give her a hard time with a few of your DD SX's, just a thought

hang in there mom

Thanks, Frank. Not yet. I do have that whole insurance issue going on as well. I do think that blood work needs to be done on her to rule out any metabolic, hormonal, etc. issues. I never though of anemia but will keep that in mind especially since she hates red meat and getting her to eat it is a challenge. Even though she eats a lot of other foods high in iron, anemia could certainly be an issue. (Although, she is a high energy girl and doesn't fatigue easily except when she is having one of these "spells.")

FinLady 08-09-2008 01:41 PM

Hope you can get that insurance thing cleared up soon so you guys have an answer. Hope it's something simple. Prayers for ya both. :hug:


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