NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   A new study on Chronic Fatigue Syndrome (https://www.neurotalk.org/multiple-sclerosis/145596-study-chronic-fatigue-syndrome.html)

TheSleeper 02-25-2011 06:05 AM

A new study on Chronic Fatigue Syndrome
 
http://www.cbsnews.com/video/watch/?id=7357544n

I wonder if any running the study would think of comparing the proteins to results of spinal fluid in MS to see if there is a link to the fatigue symptoms?

Just my humble opinion that sometimes they can`t see the forest for the trees?

kicker 02-25-2011 07:44 AM

Sleeper,
Interesting theory but I fear the study is something like "Does Chronic Fatigue make people tired?" 8-D

Seriiously, do you have a medical or scientific background. I've noticed this about you before.

TheSleeper 02-25-2011 08:23 AM

No, actually I was a truck driver, a semi-intelligent one? :) I can actually read, write, and think freely? Some things make me think...hmmm?

I had to diagnose myself, because doctors didn`t seem to follow a logical train of thought. Then find a specialist that would do the proper testing to confirm it. One of my early varied diagnosis`s was Chronic Fatigue Syndrome, so sort of a vested interest?

Just to me? if something is found to explain the fatigue in one illness? How can it hurt to check and see if there is a relationship? They already do lumbar punctures on people with MS, do another test of the blood while you have a sample available?

Kitty 02-25-2011 09:06 AM

Quote:

Originally Posted by TheSleeper (Post 747843)
They already do lumbar punctures on people with MS, do another test of the blood while you have a sample available?

It makes alot of sense.......but unfortunately doctors don't always follow the "common sense" approach. It makes me mad that I have to suggest such obvious things to them. What am I paying them for??? :mad:

TheSleeper 02-25-2011 10:01 AM

Agreed Kitty, after looking at the differential diagnosis PPMS was the only thing that made sense to me, I couldn`t get any of them to listen until after I told my second neuro I wanted to see a real doctor.

kicker 02-25-2011 10:17 AM

I had no question after reading some that I was PPMS. To give my doctor credit, Doctors usually will not DX PPMS as Insurance companies will not pay for meds. not proven to work on PPMSers or on anecdotal histories. After I failed to respond to Rebif, my doctor wrote down officially PPMS. We both knew it. He went on to become head of the MS center at Johns Hopkins. I'm proud of him. My new doctor is young, but is a great listener. We don't agree on everything but are respectful to each other. (well, I did kind of yell at him in an e-mail but we never talk about it. Jeez, I could be his mother)

TheSleeper 02-25-2011 10:29 AM

The doc that finally agreed on my dx was the number one or two man at the Cleveland Clinic`s Mellen MS center.


All times are GMT -5. The time now is 09:09 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.