Cerebral Palsy ?
 

Where oh where has our cerebral palsied forum gone?
Val (UK)

PS It has been shut so long, I have gone gray.

Hey Val, From what I'm guessing, since this is a temporary situation for time being my guess is they just put the forums back up that has the most traffic. Know what I mean?? I too was looking for the CP forum. :)

Robin

I have had questions for everyone with CP since the day before the board crashed!!!!!!! I don't have time to post it all now, but I will definitely be posting it all soon! It's so great to 'see' everyone again!

Kris
Mom to Alicia

Hi Kris will try and help you with your questions.

Hi Val how is Laura doing?

and thanks Robin for this link :)

Thanks a lot for asking, well yes she is still on G-Therapy, and finally at last her stiff right knee is starting to turn outwards. Outwards yes outwards!!! I can't believe it because she has just turned 22. We have also just come back from France, her swimming also changed, last September she could do 31 strokes on her own. Well earlier this month she got 91 strokes after that I gave up counting. She also started grabbing the edge of the pool with her arms and this was the first time she could do it without polystyrene floats around her arms. Last year she would use swimming aids at least 80% of the time, this year none after July. In fact she threw her swimming aids out July, flatly refused to use them. The other thing she found she could do was if swimming on her front she could roll over and do back swimming (never done before), but she could not get back to the front again, maybe next year. It has not been a quick miracle overnight cure, no such thing, but she IS still improving and I have just been given permission to put up a neurologists report (Dr. Christoph Garner) of his visit to the G-Therapy clinic on Brights Discussion Group a yahoo group interested in research, I wish to God that they would clinically trial it, because unless that is done there is no support. I just had to go my own way though I had been on a pilot study for 3 years, a long story there and I could write a book on it, maybe I will one day! I am just one parent long in the tooth who says my daughter who has CP spastic quad is changing on G-Therapy. How I wish she had crawled when she was 2 rather than for over 5 years in her teens! Other reports have come in from parents of young children 3 years old reporting changes from Bermuda and UK, a 9 year old diplegic Indonesian child recently, they can be seen on:
http://health.groups.yahoo.com/group/g-therapy/
I do so appreciate you asking about Laura I have a Skype headset now and can chat free on the PC to anyone in the world, so that is good because one of Laura's sisters is living in Switzerland and she has big free chats with her.
Since I am going a bit gray am not brave enough for video cam.
Good to hear from you, and I hope all is well with you,
Val
Laura's changes are on http://www.g-therapy.org/cslaura.htm
Not every child has changed on G-Therapy.
Keep your fingers crossed for Laura I couldn't find anything else out there to help and unbelievably she has had no surgeries.
Dr. Garner's report on Brights is about a lad of 27 with SSPE changing.

This link might interest.
http://www.timeswellness.com/fullSto...TW10ART9102006

Val/UK and anyone else interested we have a Cerebral Palsy forum now thanks to Doc John! :) I'll spread the word to people of whom I have e-mail addys who I think posted over there on the original BT CP forum and maybe you can too and hopefully we'll get the word out there!

And a big thank you to swift for showing an interest also! :) I like the useful link thread you started over there!

Robin

Thanks Robin I had not realized that until I saw your post.
Val (UK)

Thanks Robin I had not realized that until I saw your post.
Val (UK)

Anytime Val, just trying to spread the word! :D