NeuroTalk Support Groups - Polymyalgia Rheumatica

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Polymyalgia Rheumatica (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/10018-polymyalgia-rheumatica.html)

Polymyalgia Rheumatica

Polymyalgia Rheumatica

Hi...Just wondering if anybody has ever any experience or heard of Polymyalgia Rheumatica before. My Step-Mother a couple of weeks ago suddenly started experiencing horrible pain in her hands, wrists, and arms. Of course, I was alarmed because she had no injury. Or prior injury. It came on suddenly and with a vengence. We asumed it was arthritis. This pain put her out of commission and down for the count. She is writhing in pain and it's out of control.

Thanks....Dana

hi dana, no idea of that diagnosis, but wanted to say hi, and happy new year to ya...............miss ya
big gentle hugs...................

I was diagnosed with that in 99 by my Orthopedic Surgeon. He wanted to give me triggerpoint injections but I opted to have my PCP do it for me since it was around the heart area that I dealt with it.

Again I would think you might use lidocaine patches for her on the worst areas and as you get each one calmed down put them elsewhere. I have teased my Dr. about waiting for a bodywrap of the patches to come out. I also put a patch over my heart area due to the pain.

I have shots of lidocaine, mericaine, and have had ketimine injections it has calmed it down a lot but each Dr. treats it different. I can't take pain pills so I get the shots.

Ada

http://www.mayoclinic.com/health/pol...441/DSECTION=1
this page had some good info on this arthritis.

Hi Ada, How are you doing? So nice to hear from you but under the circumstances of my question, I'd rather you not have found this insipid Polymyalgia Rheumatica. So sorry dear. I hope your holiday season was joyous. That your kids surrounded you with love. Are you ok? I know you must have found this so difficult as it being your first year and all. But hopefully you tried really hard to keep your traditions going and kept busy.

My step-mother is absolutely positively miserable! And with my father not being in the bestest of health himself. He has myasthenia gravis this is sure not what they needed right now.

I guess G*d must know what he's doing plaguing our family with RSD, MG and now Polymyalgia Rheumatica. How can one family have so many rare problems?

I spoke with my Dad on New Years Day and their doctor decided to put my step-mom on prednisone. We are praying that this will ease her pain at least a little. Stop the tears and make her at least a little more comfortable.

Joan I read in the Mayo link that this is a good course of action and that if she doesn't respond to steriod treatment she might not even have Polymyalgia Rheumatica.

I'm keeping in touch and giving her as much support as possible and considering I've got the hand/arm RSD I can truly understand what she is going through.

I guess she falls into the category of waking up one morning in awful pain. Just didn't know what hit her. All it has done is get worse. I guess the only consellation to Polymyalgia Rheumatica is that as quickly as it has come into her life, one day it will just disappear! I hope that day comes very quickly for her.

Claudia....hey...wassup? Hope all is well with you.

Happy New Year!

With aloha, Dana