LDN as only treatment
 

I wanted to check with everybody and see how many are just using LDN? I have just started using it 1 month ago and can tell a difference, I am also on copaxone but would like to stop as I have been on it for 6 months and did not notice much of a difference until I started LDN, other than anexity (which I have never had until C) but please share your thoughts and experiences.

Thank you.

Hi zipfed!
Welcome to NT! :)
I'm not on LDN, but there's a sticky at the top of the MS forum with loads of support for those who are on LDN!

I am only on LDN, and it's all I've ever used.

If I was on Copaxone and managing ok, I would stick with both ... if only for double protection.

I am very satisfied with LDN alone.

Cherie

I've been on LDN for a year now. It's the only med I take for MS. I've been very pleased with it. I was on Copaxone (my first DMD) and it didn't work for me. LDN has been a blessing. :)

I've been on LDN for 4 years, the best choice I've made for myself. I took Avonex for a while, very bad side effects. LDN is the only thing I take now, I was having several attacks in a few months, after 2 weeks of starting LDN, the attacks are very few between and very, very slight. I take 3 mg. Very inexpensive. Good luck with your decision.

LDN is the only med I've taken for MS and I've been on it for just over two months. My heat intolerance has improved a lot and I seem to have more energy in spite of the warm weather. I'm very happy with my LDN experience. I'm glad I started in the summer or I may not have noticed the improvements for a lot longer as my MS is pretty mild. I generally dread summer but this year it's been OK.

C

LDN only, for 6 1/2 years, now. :)

Tried Rebif for 2 months and could not handle the side effects.

I am on LDN for 2 weeks now and can notice the difference and that
is what I am planning to stay on from now on.


Jappy :)

Hi zipfed and Welcome.:)
I tried Avonex for one year, and Copaxone for 3 1/2 years. Between bad Flu-like side effects from "A" and liver enzymes rising quite high (I need my liver), and infections allowed by Copaxone to enter un-noticed, I stopped all MS meds in 2004. I was on nothing for 4 years and tried 'C" again for 14 days.

The side effects from "C" were worse then when I used it before. I don't know why. Something had changed. Last month I had a Dematofibroma removed from my thigh, the Dermatologist said the "C" could have caused it. It is still healing, but it was painful and itchy for over a year.

I guess my body does not tolerate the DMD's. They also did not help me. Or stopped working. I still relapsed very often. Some were acute and required IVSM to walk again along with the "C". So for 4 years I was not on any MS medication, as per my MS Specialist. We looked for a treatment plan.

For the last 8 months I have been on LDN, no DMD's for those 4 years, and I will never go off of it. It has changed my life for the better. So many improvements. I even found old residual symptoms leaving.

I was dx'd MS in 1981, symptoms doctors could see in 1978, but I had to "wait and see" in limboland for 3 years.

If you feel "C" is helping you, you can use Combo therapy and use both. It cannot be used with the interferons. The method of action of the interferons would conflict with LDN, IMO.

I hope this answers your question.:)

Thank you everybody for the replys, this helps alot.