NeuroTalk Support Groups - Starting Tysabri

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Starting Tysabri

I posted my news on the Tysabri thread, but also wanted to post it in the general forum to shout out my news to everyone! :yahoo:

I am scheduled to begin Tysabri infusions September 25. In my heart, I believe it will either keep me at the level I am right now, or (hopefully) improve me.

I have talked to a number of people at the infusion center where I get my IV steroids, and read a lot of posts here praising Tysabri.

Over the past year, my MS has gotten a lot worse despite being on Betaseron for three years, Copaxone before that, and Avonex before that. My balance has gone from bad to worse. I've had to severe bouts of ON. My tremors are worse. The last three fingers on my left hand are completely numb, making typing very difficult. I could go on, but you get the picture. :Painting:

At my last neuro appt, he and I agreed that we needed to be more aggressive. I refuse to go down without a fight. I sure don't want to lose any more of my abilities, especially my ability to walk.

So, I'm excited about this and very, very positive. :):)

Good for you, MaryAnn. I'm proud of you for fighting with everything you got..You go girl!!!!

With Rots a Ruck..:hug::hug::hug:

Wahoo! :cool: You rock star! :D

I am so proud of you for making that choice. its a hard choice to make, but it sounds like the other therapies are not working for you. I have heard some amazing results with the Ty crowd.

Hang in there, and remember you have a room full of cheerleaders waiting for you to come back and spill it. :hug:

Hope that Ty helps you where the other ABCs didn't...keep us informed about how it's going...

That's great, Mary Ann! I hope it turns out to be the magic bullet for you. Lots of people have had amazing success with it and you've got plenty of moral support here on this board from members who are on it and having great results. Keep us posted on your progress. :)

Hi MaryAnn,
I am glad you made a decision of a new treatment plan and are happy and confident with your choice. :)

That is what it is all about, choice. Since we are all unique in our MS, our treatments must vary too. I pray you see a good outcome with this drug. Maybe you will be dancing soon, you never know.:hug:

Keep us all updated, but I guess it takes a few infusions of Ty to see some results.

I just wanted to add my good wishes MaryAnn. I've been reading about so many who've done well on Ty so I sincerely hope that you can join their ranks! :hug:

I can't take any of the ABCs due to reactions, but my neuro hasn't even discussed Tysabri with me. He suggested that maybe I should think about chemo when I have my next exacerbation. I'm not sure how I feel about that but I'm definitely keeping Tysabri in the back of my mind.

Good Luck Mayann!!!:hug:

Good luck! Keep us posted. I am supposed to start the ty in Feb. Doc wants 6 months worth of Avonex in me before she calls it quits with the ABCs, but she has already told me to expect the switch. So let us know how it goes. I wish you the best of luck!

Thanks Legz, and I wish you the best in February.

Thanks to everyone for their good wishes. This is yet another different path taken in my life. :)