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-   -   Sorry I haven't been around much... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/103350-sorry-havent.html)

Dew58 09-19-2009 12:09 AM

Sorry I haven't been around much...
 
Hi Friends,

It has been raining all week here..and I haven't slept much at all. I have been in a harsh flare, and even upping the OpanaER to 30 mg x 2, is barely taking the edge off this pain.

I leave my puter on 24/7, and have popped in a few times..but no energy to send my images to my buddies. I will be better soon.

Get this, last night, around 10:00 PM central time, the phone rings and hubby cks caller id..it is my x boss that terminated me over 1 yrs ago??? The same boss that told me that my pain was my problem, and the corp. I worked for was not Walmart..there are no greeter positions(idiot, greeters stand up at Walmart!). I was laying down, and was not in the mood to talk to her..I owe her nothing. She left a message asking me to call her back...yeah, RIGHT!!!

I spoke to my atty. today, and he told me to ignore her call. I don't have to deal with her. I see the atty.'s doctor in one month; it is then that the doc will figure out what I NEED to LIVE life as a CRPS patient, that is now drawing SSDI, because of 2 WC injuries/surgeries, (2 1/2 yr ago since 1st injury..and start of RSD.) I told the atty. that I need water PT, I need a scooter..I need a doc that knows more than pain medicine. I need an RSD specialist..the best. It will all be addressed when I see the atty.'s doctor and he evaluates me.

Finally, I see a light at the end of this tunnel of hell. I know there will be more delay,etc, however, we will be before the judge and these demands for my welfare will be addressed.

I hope to be back full throttle this weekend. Miss each of you.

love,:grouphug:
Dew

CRPSbe 09-19-2009 06:34 AM

Hang in there, Dew!

keep smilin 09-19-2009 07:38 AM

Good to hear from you, Dew....
 
Quote:

Originally Posted by Dew58 (Post 568141)
Hi Friends,

It has been raining all week here..and I haven't slept much at all. I have been in a harsh flare, and even upping the OpanaER to 30 mg x 2, is barely taking the edge off this pain.

I leave my puter on 24/7, and have popped in a few times..but no energy to send my images to my buddies. I will be better soon.

Get this, last night, around 10:00 PM central time, the phone rings and hubby cks caller id..it is my x boss that terminated me over 1 yrs ago??? The same boss that told me that my pain was my problem, and the corp. I worked for was not Walmart..there are no greeter positions(idiot, greeters stand up at Walmart!). I was laying down, and was not in the mood to talk to her..I owe her nothing. She left a message asking me to call her back...yeah, RIGHT!!!

I spoke to my atty. today, and he told me to ignore her call. I don't have to deal with her. I see the atty.'s doctor in one month; it is then that the doc will figure out what I NEED to LIVE life as a CRPS patient, that is now drawing SSDI, because of 2 WC injuries/surgeries, (2 1/2 yr ago since 1st injury..and start of RSD.) I told the atty. that I need water PT, I need a scooter..I need a doc that knows more than pain medicine. I need an RSD specialist..the best. It will all be addressed when I see the atty.'s doctor and he evaluates me.

Finally, I see a light at the end of this tunnel of hell. I know there will be more delay,etc, however, we will be before the judge and these demands for my welfare will be addressed.

I hope to be back full throttle this weekend. Miss each of you.

love,:grouphug:
Dew

Hello Dew.. Nice to hear from you..Please, take the time you need to feel strong enough to re-join us. Know that you are missed.. It was your images that drew me into becoming an active contributor of this forum.. I always read up on the RSD stories of others but I must tell you when I saw your images I thought this has to be an supportive, fun place to be so here I am writing to you saying..you are missed and I/we all completely understand what you are feeling.. Welcome back!!! Keep Smilin...:)

One day/one hour at a time...:grouphug:

SandyS 09-19-2009 08:08 AM

Hi Dew,

Feel better, my thoughts and prayers are with you as you go though this flare. Keep your chin up and good luck.
Sandy



Quote:

Originally Posted by Dew58 (Post 568141)
Hi Friends,

It has been raining all week here..and I haven't slept much at all. I have been in a harsh flare, and even upping the OpanaER to 30 mg x 2, is barely taking the edge off this pain.

I leave my puter on 24/7, and have popped in a few times..but no energy to send my images to my buddies. I will be better soon.

Get this, last night, around 10:00 PM central time, the phone rings and hubby cks caller id..it is my x boss that terminated me over 1 yrs ago??? The same boss that told me that my pain was my problem, and the corp. I worked for was not Walmart..there are no greeter positions(idiot, greeters stand up at Walmart!). I was laying down, and was not in the mood to talk to her..I owe her nothing. She left a message asking me to call her back...yeah, RIGHT!!!

I spoke to my atty. today, and he told me to ignore her call. I don't have to deal with her. I see the atty.'s doctor in one month; it is then that the doc will figure out what I NEED to LIVE life as a CRPS patient, that is now drawing SSDI, because of 2 WC injuries/surgeries, (2 1/2 yr ago since 1st injury..and start of RSD.) I told the atty. that I need water PT, I need a scooter..I need a doc that knows more than pain medicine. I need an RSD specialist..the best. It will all be addressed when I see the atty.'s doctor and he evaluates me.

Finally, I see a light at the end of this tunnel of hell. I know there will be more delay,etc, however, we will be before the judge and these demands for my welfare will be addressed.

I hope to be back full throttle this weekend. Miss each of you.

love,:grouphug:
Dew


hope4thebest 09-19-2009 12:01 PM

Hi Dew,
I'm glad you're getting some rest...sometimes we need a retreat from everything in order to get back on keel..let your attorney do the thinking and footwork regarding the call from you ex-employer so that you can free your miind and spirit for regaining strength and equilibrium..
thinking of you
Hope4thebest :hug:

AintSoBad 09-19-2009 05:35 PM

Linda,
Like you tell others,
don't let the disease mark you.
In the same way,
don't let attorneys or the ins. docs. and ins. lawyers, don't let them get inside "Your Head"!
We' all beautiful children of God.
What these "Outsiders" want to do, is take us under their command.

DO NOT Give IN!

It very difficult, until you "turn that key" ya know?
Then you're FREE!

Nobody can work you again!

Maybe our friend Bobber might comes in and helps me on this.

For where there is God, Where is the Oppressor?


love,
Pete

SandyRI 09-19-2009 08:35 PM

Quote:

Originally Posted by Dew58 (Post 568141)
Hi Friends,

I told the atty. that I need water PT, I need a scooter..I need a doc that knows more than pain medicine. I need an RSD specialist..the best. It will all be addressed when I see the atty.'s doctor and he evaluates me.

Finally, I see a light at the end of this tunnel of hell. I know there will be more delay,etc, however, we will be before the judge and these demands for my welfare will be addressed.

I hope to be back full throttle this weekend. Miss each of you.

love,:grouphug:
Dew


Get your list together girlfriend!

Have you considered Dr. S in Philly? Why not make an appt? It takes 18 months to get in, so you have time to get WC to approve it. Or try to get in with another well respected RSD specailist that may be closer to you. Perhaps go over the list of ketamine doctors that is available from Jim Broatch (see Ketamine Klub on FB). Have you tried Lidocaine infusions yet? I just had my 3rd. They have definately chilled me down some. The RSD had spread to my right leg, and the infusions made the leg a bit better. I also had a block which worked to some degree (but I think wore off a lot after 12 days). What is quite noticeable about the infusions is that they make me very relaxed and I sleep better and more often - I nap almost daily.

Take care Dew, we miss you. XOXOX Sandy

Sandel 09-19-2009 08:45 PM

Quote:

Originally Posted by Dew58 (Post 568141)
Hi Friends,

It has been raining all week here..and I haven't slept much at all. I have been in a harsh flare, and even upping the OpanaER to 30 mg x 2, is barely taking the edge off this pain.

I leave my puter on 24/7, and have popped in a few times..but no energy to send my images to my buddies. I will be better soon.

Get this, last night, around 10:00 PM central time, the phone rings and hubby cks caller id..it is my x boss that terminated me over 1 yrs ago??? The same boss that told me that my pain was my problem, and the corp. I worked for was not Walmart..there are no greeter positions(idiot, greeters stand up at Walmart!). I was laying down, and was not in the mood to talk to her..I owe her nothing. She left a message asking me to call her back...yeah, RIGHT!!!

I spoke to my atty. today, and he told me to ignore her call. I don't have to deal with her. I see the atty.'s doctor in one month; it is then that the doc will figure out what I NEED to LIVE life as a CRPS patient, that is now drawing SSDI, because of 2 WC injuries/surgeries, (2 1/2 yr ago since 1st injury..and start of RSD.) I told the atty. that I need water PT, I need a scooter..I need a doc that knows more than pain medicine. I need an RSD specialist..the best. It will all be addressed when I see the atty.'s doctor and he evaluates me.

Finally, I see a light at the end of this tunnel of hell. I know there will be more delay,etc, however, we will be before the judge and these demands for my welfare will be addressed.

I hope to be back full throttle this weekend. Miss each of you.

love,:grouphug:
Dew

Sounds like your lawyer has things in hand :)
Hugs Dew, sending you warm weather wishes hon.

:hug:
Sandra

nancyinLA 09-19-2009 11:13 PM

have missed u! i know how attorneys & W.C. can get u down!! hang in there....remember that God has a grand plan 4 u! each day is a challenge - each one tests our faith! will keep u in my prayers. thks 4 all u've done 4 us! rest and b ready 4 tomorrow! luv ya :hug:

dreambeliever128 09-20-2009 05:09 AM

Hi Dew,
 
Sorry to hear that you are having a hard time right now.

There's that weather thing again. Seems like all of us are dealing with it. I have had a horrible month and half due to the crazy weather we have had. It's going to be nice today but I guess we have some really bad weather coming in this week. I think the barometer is changing back and forth a lot lately. When it changes our pain levels change.

As far as WC, I have never dealt with it but I see what people go through with it. It's horrible how they treat people.

As far as the scooter, I hope you can get one. I heard on the news that getting scooters are going to be one issue that will be effected by this new healthcare plan. It will be harder to get them. Not that it's not already. Bill couldn't get one when we knew he didn't have long to go.

Get better soon so you can start putting those neat images up again.

Ada


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