what can i expect???
 

I was dx a year ago today with ms and i have been told the worse is yet to come and i just wanted to know what to expect. i just had a baby girl two months ago and i just want to be prepaired for anything. :confused:

Hi there kentucky_wildchild, and welcome to NeuroTalk.

That was very unfair of who-ever told you the worst was still to come, because nobody knows what's in our future when we first get diagnosed.

I was diagnosed 32 years ago, and I'm still doing OK. I only gave up work 2 years ago but that was due to a combination of things like middle age, MS and major surgery for cancer.

Please know that each and every MSer is affected differently, and we've often said it's like we all have a different disease.

Some people have problems at the beginning that go away, never to return. Other people's problems go away for varied periods of time, only to resurface at intervals through out their lives. These people make up 1-2 thirds of all MSers.

Then there are those people who's problems seem to continue to get worse no matter what they do, but please know that this group make up the other one third. Most people don't reach this stage, so please put them out of your mind for now.

Welcome to NeuroTalk especially to our MS Forum. :hug:

I agree 100% with everything Koala said. Whoever told you that is very misinformed.

Please put those thoughts out of your head and just enjoy your little girl while she's young. They grow up so fast! :)

It's true, everyone differs. But DXed in 2001, full disability 2003, in a chair 2007. But there were 10 years before that I did not even seek DX for a slight non-life affecting dizzy. After DX I still could still do lots of stuff. But I was kind of prepared for what might occur. Had a walker ready chosen without pressure, a chair I could use when need arose and glad I did, mine (the good one) took longer than I'd care to be not-mobile. Don't dwell on things that may never happen (a million things never did happen to me that I read happen to others) but be like a girl scout - be prepared - or is that boy scouts? Be organized and prepared, it'll still throw you for a loop, but you'll have some things done. When I knew my stair climbing days were coming to an end, I went up in the attic to look around, take out and clean out some stuff. Many things may never happen,I had years of no DX and just some dizzy, enjoy your daughter, do anything the opportunity is given to do,live out loud, just do without dwelling. My MS is so different from others. But I try to be aware, without getting too hung-up on IFS and MAYBES.

agree, agree, agree with what the others have said.

This wacky disease treats all of us a little differently. I'm from a family that had two others with MS as well, and all 3 of us have had different paths. My mom had a very aggressive form, but my grandmother was able to work in her pathology job up until her 60s. Both had experienced some symptoms that I haven't had to go through so far.

For me, the unknown has been the roughest thing for me to handle - having seen the best and worst courses in my other family members. But have learned to take each day at a time - a bit cliche, but works.

Take care of yourself. :hug::hug:

I just want to add my support :). I've been diagnosed for two years and I agree with everyone else. There really isn't a way to predict this disease's course. Everyone is so different. Like Kitty said, enjoy your little girl while she's still little :). Time flies by and before you know it they're teenagers :D.

That's exactly what happened to me!! My sweet little boy who sang so sweet became a big guy who loves eating and driving. My sweet little girl sometimes rolls her eyes!!! And I consider that dress short!

MS is not really in your control.

Find doctors that understand and take the medications that will help you the best.

I wake up each day, do a body check and then live my life.

You have a beautiful little girl that will give you a bit of worry with fevers, teething, temper tantrums and laughter.

MS may be an intrusion in your thoughts but that girl is why you get up and live with your new normal(s).

I don't know Latin but I think the term is: Carpe diem - Seize the day.

you have gotten some great advice here. NO ONE can predict the course of YOUR MS. its so different for each of us. Some of us ride the mild lane for the rest of our lives, and others skip over to the SPMS lane. its not in our control.

What IS in our control is how we react to it. We can eat right, exercise, take good mental health care of ourselves. Be good to ourselves, and our families. Try to not let it get you into a corner of depression or worry. Come here and vent, or ask questions.

Sorry you had to find us this way, but welcome to the club house. Did anyone teach you the secret handshake?

I'm sorry someone told you that. Everyone's MS is different - everyone's. Enjoy your daughter and keep active. Take care of yourself and enjoy life. What will come, will come.