Are we sick of fatigue yet?
 

Now it's more than 5 years since I started chasing a diagnosis, and coming up on 3 since I was diagnosed, and STILL the hardest symptom for me to deal with (especially relating to other people) is the fatigue.

People who have never experienced chronic debilitating fatigue are just not going to get it. Doesn't matter how willing they are to try. Doesn't matter how many "It feels sorta like..." examples we give them.

When I explain that "sorry, I'm too tired", or "sorry, I will BE too tired if I do that/go there", I try to duck and run before the sincerely motivated dear people start trying to "help" by suggesting I take a nap ahead of time, leave early, rest the next day, etc.

Yup, those things sometimes work, but if they suggest those ideas and I STILL say no, it sounds as though I'm saying "Whatever you want me to do, or think I SHOULD do, or think I will enjoy just isn't worth all the effort it would take for me to do it."

And guess what? That's usually what I'm saying. Oh well.

yes, sick to the back teeth of it.
A simple walk around the boundary fence becomes a challenge.
Getting off the sofa takes an effort.
Where did my life go? What did I do that was so wrong?

Oddly enough, I'm in the middle of a bout today but I saw a shift on my work site that I could do on Sunday. I need the money and I convinced myself I could do it if I rested up until then. I was even going to fib to Himself (cos he really doesn't want me working anymore).
Luckily it had been taken already and it's a relief that I don't have to work it.

I'm sick of it all. :(

I'm just tired of always thinking about it......the fatigue. Never feeling really quite "right". And always wondering when it will sneak up on me. I miss the days when I went to work for 12 hours, did grocery shopping on the way home and went to bed at 11:30 PM only to rise again at 4:30 AM to do it all over again!

Well, I really honestly don't miss the working part of it.....but I do miss the social interaction and just the feeling of being able to do all that. Whether I want to do it all or not.....I want the choice. The choice has been made for me and I don't like that.

But......there's always a "but".......it's forced me to slow down and take notice of the world that was flying by me and for that I'm grateful. So, somehow I feel like it's a mixed blessing. And, why not me? Who would I want (besides me) to have this MS? Nobody.....I wouldn't wish it on my worst enemy. I have this challenge for a reason. I might not know what it is while I'm here on this earth but one day I will know why I was picked. Until then, I'll just do my best and be thankful for all that I can still do and all that I've been forced to slow down and take notice of.

I am so tired of the fatigue (pun intended). No, people don't get it. The only time I can say someone truly understood was when she was going through chemotherapy. I couldn't imagine how she felt going through all of that but when she talked about the fatigue I could truly understand. Then she could understand my fatigue.

I hate it, literally. My body is getting used to Provigil and it's not working like it was. I'm applying for jobs that I know I can't do though I would have been able to do them 7-8 years ago. I'm fatigued, I get nausea then headaches from my meds. I have to ask for more meds for that.

We have a home office and I've been setting my alarm to wake at 8:25am, five minutes before business starts though all I have to do is sit in my chair and it's wearing me out.

I don't have energy to clean the house. I force myself to exercise and then I'm exhausted for two days from 30-40 minutes of effort.

I have to ask the MS neuro about SSDI and I'm not happy about that. :(

Thats the one symtom that I detest most! I'm always "tired". I thought getting more sleep would help but I swear I could sleep 16 hrs. a day and still have no energy. Since I retired 3 years ago, my family is always asking me to do their little errands when they are working. They just don't get " I'm too tired" I wouldn't wish this disease on anyone but I swear I wish some members of my family could experience the symptoms for one day. Bet they wouldn't call me for so many "favors"