Burning Mouth Syndrome Recovery Stories
 

Has anyone on the forum recovered from burning mouth syndrome? Would love to know what your symtpoms were, time it took to recover and what you attributed the recovery to. Also, what do you think the cause was. In my case, the doctors are scratching their heads.

Grateful for any realistic hope. Have had BMS since June of 2009.

Hi dbrow. When I was first stricken with neuropathy back in November of 08, I also experienced some burning of my mouth, but mostly my lips. The doctor at the time didn't know where it came from, it just seemed to come on with the rest of the nerve problems. Over a course of time the burning became less and less in the lip area even though I was still having other pain elsewhere. I haven't felt it in quite awhile. It could come back, but so far so good. I didn't take anything to get rid of it, it just took time in my case. Best of luck to you...

Have you done a 'search' (top of page) for this?
There are lots of past posts

Hi,
I've had "burning mouth" since the onset of my PN almost six years ago. I just had a bout of it last week with my worst flare up in a couple of years. No one seems to know how to make it better, would love a lidocane mouth rinse myself. I burn in tandem with a flare up in my feet, the best pain reliever for my feet is cold water so I held cold water in my mouth too. Didn't completely take the pain away, but it helps for a bit. It hurts more after eating so I brush my teeth right away. Good luck with this, it really hurts and its hard to distract yourself from mouth pain.

There is also a current "burning mouth thread" here:

http://neurotalk.psychcentral.com/ne...ote=1&p=580183

it has some good ideas.

Last night in the wee hours I'm sitting on the edge of the tub with my feet in ice cold water so I can again lay down and try to get some rest. With my head in my hands I'm wondering how I'm going to remedy the pain in my mouth once I've resolved the feet "afire" to try again to fall asleep! For some reason my mouth will quit burning for a short while if I brush my teeth, so I brush my teeth alot! Then add to that a very dry mouth from flexeril..I decided to take a swig of Listerine, which I hate to do because of the burning feeling it causes....but I did it anyway and low and behold pain relief..I managed four hours of sleep last night because of that. The short burn of Listerine was so worth it for the relief it gave me so I could get some sleep. I don't know if it will work the next time my mouth/feet keep me awake, but I sure am going to try it. Heck, who knows maybe you'll catch me soaking my burning feet in Listerine in the wee hours of the morning.
Aren't we a lucky lot? I wouldn't wish this 24/7 existance on my worst enemy, but it still beats the alternative!

I've tried Listerine in a pump spray bottle, years ago.
It seemed to work, on occasion, but the 'aroma' eventually
made me stop using it.
My feet smelled like my teeth ;)
(Oh, Cisco.....Oh, Pancho!!)

I have tried that, and it does help but it makes your skin kinda sticky. When my husband had shingles, I read somewhere that it would help the pain--and I reasoned then that it might help my burning feet and legs. Joan

Bms
 

Hello Dale, This is my 1st time here. I can empathize with you and anyone who has BMS. I have been suffering with BMS for 2 full yrs next mth! Within that time mine has gotten worse too! Since Dec 2007 my whole life has changed! I don't know what started the BMS?! At first my doctor didn't even know about it. I have been taking a 150mg Lyrica cap once/dy for some time. It is not enough but I don't like the effects that these drugs have on me! Plus they are very, very expensive. I am unable to work, I have few friends, and no family anywhere near me. I am all alone! The burning pain over my tongue is unbearable and it rarely stops! My gums are also affected and my lips burn too...red raw! This is a hell all of it's own. I wish I could be more positive for you. But you see, I am seeking answers too. I am so sorry that you've had it for 3-4 years. Help! Oh and I do know that Gabapentin is a bit cheaper than Lyrica and these 2 drugs are cousins. I chew 'Gum' 24/7 as it does something to help the burning. I also drink luke warm Peppermint Tea. For some reason I find it soothing. I'll be in touch when I can. Thank-you, Angel :hug: