Worried Sick
 

Hiya everyone

I have just been diagnosed with a 8.3ml unruptured aneurism in the circle of willis in my brain. I have to wait for 10 days and then I get a phone call to say what treatment will be offered. Maybe coil, maybe open surgery.

I feel dreadful. I don't know if its all psychosomatic(spelling?) but my head is sort of always pumping. Its not hurting just feels like blood trying to squeeze through. I've been taking paracetamols which helps. But just so scared - should I be worried?

Added to this I now realise I do have other symptoms - I'm always grasping for words - thought it was just aging - very sensitive to smells and have coughing fits. Literally cough and my nerve ends all over my body hurt. Anything from marzipan to cleaning fluids can set it off. Is this because of my poorly brain?

It would be good to hear from someone as I'm a bit alone here.

Hi Ewoolf
 

I'm sorry to hear about your aneurysm. I am praying for you. I have one that is 8.5mm on the top of my basilar and have 5 arteries feeding into it. Let me know if they can help you. Do you have any arteries feeding into to your aneurysm? I grasp for words and have the pumping feeling also, especially when i bend over or get upset, sometimes just by standing up it will happen. All this is so scarey but everyone on here will help you get through it. They have been helping me. If you need anything just reply. Your in my prayers,
Cheri :hug:

Welcome

I would be worried sick too. That's not good news. It always sounds bad in the beginning so don't get to worked up yet.

There's a lot of info here, so it will take a while to get through it.

Here's some links to start off with:

aneurysm:

http://neurotalk.psychcentral.com/forum7.html

Social Chat:

http://neurotalk.psychcentral.com/forum35.html

some good stuff in there.

Keep us posted.

Its good to talk!! I just don't appear to be able to find out as much information as I need. I suppose once I hear back from the hospital all will become clearer. Its just things like whether coiling is going to leave me with a permanent headache - so that I want to claw the thing out of me? Will I be the same me? How long does it take to recover? Will my friends and family try to avoid me now? Can I still trust my own judgement? - just nightmare scenarios like this are occurring to me. And on and on and on ............

Thank you for your understanding.

Hugs

http://i489.photobucket.com/albums/r...me-bug-ag1.gif



Hi Ewoolf, and welcome to NT! This is such a great place, with many nice, caring, and helpful people.

We're so glad you found us! :)

My aneurism saga is still continuing. I seem to have spent weeks and weeks just waiting for these 'crucial' phone calls from neurologists who then tell me there is nothing to report, or what the next test is going to be. At the moment I am waiting to hear on Tuesday at 4.00, what treatment is now proposed following a group meeting of neurologists and radiologists on Monday.

I do now know that following the latest CT scan with contrast that the aneurism is small, on the left carotid artery. I asked what had happened to the 8.3ml aneurism shown by the MRI scan, but didn't really get a clear cut answer as to whether we were talking about the same thing.

I have naturally been trying to come to terms with this 'phone call' type of mental torture and have veered from thinking I am walking round with a time bomb in my head, to maybe there isn't much wrong as they don't appear to be too concerned.

My life is totally on hold and I know I should be grateful that the MRI scan I originally had to find the cause of my loss of smell found the aneurism but I feel like I am being driven crazy.:mad:

Well the phone rang again and she was very kind in explaining that they now want me to have an angiography to see what is the best way to reach my aneurism so that they can coil it. Its has a neck and is about 7mm at its widest on the artery leading to my left eye. Am hoping they find an extremely good way to get there!!

I felt pretty emotional after the call as had not realised it was so close to my eye - guess I just have to get over it.............

So now they send me the appointment and I guess it will be a few hours in the hospital for the angiography. Does anyone have any info about this?

I'm looking after poorly husband at the moment as he has just had his right knee replaced. He's in a lot of pain but this should lessen. I doubled his painkillers last night - hopefully this was OK. I looked up the dosage on the internet and he is meant to take 150mm a day when the maximum dosage is 400mm. The physio and blood tester arrive this morning so should get some input from them if my Dutch is up to it. I was worried that his ankle looks very black/bruised. Honestly you do feel as though you have been strung up and left out to dry after one of these ops. I'll just shut up now.

Big hugs everyone

:grouphug:

Hello
 

If it means anything, my ex (who I am still very close to), hand an aneurysm around 4 years ago. I believe it was more than 7mm and it had erupted while she was working out in her basement. She, of course was in excruciating pain. She was rushed to the hospital. She had three coils placed in her head, and she has completely recovered from the surgery.
The fact that yours is intact, must be somewhat comforting. I wish you the best.

Hi how are things going with you I also findmyself looking for information before I set myself up for this next journey.
Laanka

Very little has happened - think this is probably good news - except think the 'bruit' is more constant/louder now. I go for a chat with the neuros on the 8th and then for an angiogram on the 14th. After that they will decide how best to treat me. Does anyone know if there are after effects from the angiogram?

Best wishes to everyone.

xxx