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NARCOMS Gene Research :)
A few months back I was asked if I were interested in being in this study. They are testing 10,000 MS patients blood for gene study research. It does not matter the type, level of disability; the only requirement is you have a definite MS diagnosis.
I was recently contacted and asked if I were still interested in the study. They are sending me the kit and postage paid return box. This will cost me nothing or cost my insurance anything. I can go right here in town to have my blood drawn. I will not be told my results but instead the groups results. I was also told when they called 50 to 100 genes are involved where MS is concerned. I get my blood work done tomorrow (Tuesday:)) morning. Already called Fed Express for a Priority Overnight pickup tomorrow afternoon. Needed to explain there was blood in the package and it's being mailed in accordance with the law. Aside from my 2 neuro's at Pittsburgh's MS Clinic and also releasing my neuro's records from the doctor I saw in Baltimore at Johns Hopkins. Too, released are my Outpatient Clinic Records, Progress Notes, Consultations, History & Physical Exams, Medical information related to my illness, Radiology Reports, Radiology Images, Diagnostic Imaging Reports, Laboratory Reports and Discharge Summaries. I hope Dr. Hauser is able to get to the bottom of this MS puzzle. This is through the University of CA, San Fransisco Multiple Sclerosis Susceptibility Project Sponsor/Funding: NIH/NMSS/Nancy Davis Foundation |
Cool!
I am one of those 10,000 patients. :) |
I signed on for this awhile ago. I'll be waiting for their call now!
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blood test
I'm in this too. I was under the understanding that I would get a letter when the study was over, but I would not receive any info on what my blood showed them. Only what the 10,000 had in common.
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I did this, well I tried, Could not give enough blood before vein collapsed, but I tried!!!
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