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-   -   NARCOMS Gene Research :) (https://www.neurotalk.org/multiple-sclerosis/106634-narcoms-gene-research.html)

0357 10-26-2009 01:26 PM

NARCOMS Gene Research :)
 
A few months back I was asked if I were interested in being in this study. They are testing 10,000 MS patients blood for gene study research. It does not matter the type, level of disability; the only requirement is you have a definite MS diagnosis.

I was recently contacted and asked if I were still interested in the study. They are sending me the kit and postage paid return box. This will cost me nothing or cost my insurance anything. I can go right here in town to have my blood drawn.

I will not be told my results but instead the groups results. I was also told when they called 50 to 100 genes are involved where MS is concerned.

I get my blood work done tomorrow (Tuesday:)) morning. Already called Fed Express for a Priority Overnight pickup tomorrow afternoon. Needed to explain there was blood in the package and it's being mailed in accordance with the law.

Aside from my 2 neuro's at Pittsburgh's MS Clinic and also releasing my neuro's records from the doctor I saw in Baltimore at Johns Hopkins.

Too, released are my Outpatient Clinic Records, Progress Notes, Consultations, History & Physical Exams, Medical information related to my illness, Radiology Reports, Radiology Images, Diagnostic Imaging Reports, Laboratory Reports and Discharge Summaries.

I hope Dr. Hauser is able to get to the bottom of this MS puzzle.
This is through the University of CA, San Fransisco
Multiple Sclerosis Susceptibility Project
Sponsor/Funding: NIH/NMSS/Nancy Davis Foundation

Twinkletoes 10-26-2009 02:20 PM

Cool!

I am one of those 10,000 patients. :)

Riverwild 10-26-2009 06:58 PM

I signed on for this awhile ago. I'll be waiting for their call now!

karilann 10-29-2009 10:56 AM

blood test
 
I'm in this too. I was under the understanding that I would get a letter when the study was over, but I would not receive any info on what my blood showed them. Only what the 10,000 had in common.

kicker 10-29-2009 11:15 AM

I did this, well I tried, Could not give enough blood before vein collapsed, but I tried!!!


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