Hello hello!
 

Greetings all!

Registered a little bit ago and wanted to say hello now. It would be nice to meet others with similar medical conditions that can directly relate.

I am Brian, 30 year old male living in Pennsylvania. For about 6-7 years now I have had bouts of arm and leg twitches. They happen whenever my body feels weak, such as when I have not had enough sleep (the most common cause), hungry, cold, stressed, nervous, etc. The most minor, and most frequent, incidents involve just a short jerk of one or both hands (1 happened as I wrote that sentence). Sometimes they get up to some arm or leg spats, and the most severe ones can result in one or both legs losing all their strength for just a split second, and I will fall down. I can immediately get back up again, but then it may happen again seconds or minutes later.

The 2 neurologists I have seen over the years do not have a name for this particular condition. It seems that the various neurological disorders have a variety of symptoms, and many of them overlap with each other. The particular "bundle" of symptoms I have though has no medical name.

My first neurologist from several years ago prescribed Depakote to me, but that had absolutely no effect on me, positive or negative (same with a stronger dose).

A few months ago my newest neurologist got me on a medication treatment involving a mix of Levetiracetam and Lamotrigine, and those have worked phenomenally well. All but the most minor symptoms were erased, almost immediately after starting. It has been that way for a few months, but then the symptoms have been working their way back in for the last few weeks. Nooooooooooooooo!!!!!!!!!!!!!!!

I am going back to talk to my doc again, but also I am also looking for a new job (just quit my crappy one a few weeks ago, with the confidence that I could get a new one without having this condition factoring in...so much for that now).

I am wondering what types of jobs others with our symptoms have. Normal ones like everyone else, ones specifically accommodating to us, other? Is there a particular forum on this board for that type of discussion, or is this the right place for it?

Thanks,

Brian

Welcome to NeuroTalk. Great to see you have come to be with our loving group. There are a number of friends will to assist as we can. Just let us know how we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene:hug:

Welcome to NeuroTalk Brian! :Wave-Hello:

There are lots of nice people here and I think, just an awesome community. :)

Have your doctors said anything to give you an idea of what they think it might be?

There are several different forums here for various conditions and some others are just for having fun and sharing.

I'm in the same boat in regard to job searching, though I'm a bit older than you :icon_eek: and have been looking for about two months. It can take awhile to find a job in this economy but keep your chin up.

I hope you'll make some friends here and find some tips on coping with your symptoms too. Take care! :)

http://dl9.glitter-graphics.net/pub/...w54pzxonzr.png

Welcome to NT

There's lots of info here, so make yourself right at home. We're here to help you find answers.

This is a site you might find useful. It's the dpt of voc rehab. When you have a medical condition and you're trying to work, find work, or get retrained because of medical conditions, they have lots of services available to you. Like an evaluation to see what field you might be able to work in. Limited medical services but can pay for some things if you can't.


http://www.google.com/search?sourcei...2bPennsylvania

Disabled workers have rights in the workforce. Check some of these sites out.

http://www.google.com/search?sourcei...workers+rights

I don't know what's causing twitches. My muscles has twitched from time to time, thumbs, arms, back, leg, but I think mine are from muscle spasms. Muscle spasms are a body's way of saying there's an underlying cause, like herniated discs in my neck, TOS/scalene/pec cause muscles to spas a lot. Do you have any disc problems? have you had MRIs? blood tests? EMG/NCVs? How about vitamin deficiencies? poisioning from some unknown source?

Do you use a cane? walker? or something to prevent falls? an ounce of prevention is worth a pound of cure.

Vitamin forum.

Sometimes doctors overlook simple things like this. Vit D, folic acid can help conditions that have baffled docs for years.

http://neurotalk.psychcentral.com/forum49.html

rare disorders

http://neurotalk.psychcentral.com/forum49.html

Hope you get some answers soon.

Welcome to our wonderful community.:hug:

Thank you everybody for your welcomes!

Thank you for the work-related links as well. I will be exploring those, as I try to figure out my short-term and long-term employment prospects.

Brian

hi brian and welcome,

broken wings is the best. i don't know how she comes up with all those great links.

i would stay in close contact with your dr. hopefully with some tweaking he may be able to keep your sx's (symptoms) at bay.

good luck with the job search too.

hope to hear more about you.