Royal victoria hospital belfast teaching hospital
 

LINK
http://209.85.229.132/search?q=cache...&ct=clnk&gl=uk
OR SEARCH GOOGLE UNDER ROYAL VICTORIA HOSPITAL BELFAST

When I was confirmed as having myashenia gravis because it was a teaching hospital we were visited each day by different groups of students who were getting the opportunity to see a rare neuro disorder first hand .They got the opportunity to diagnosis your condition ,test each of the known symtoms and question you about your feelings.
The teaching co-ordinator printed for me and each of the students from wikipedia.org the following pages
1 WHAT IS MYASTHENIA GRAVIS
2 CLASSIFICATION
3 SIGNS AND SYMPTOMS
4 PATHOPHYSIOLOGY
5 DIAGNOSIS
6 ASSOCIATIONS
7 IN PREGNANCY
8 TREATMENT
9 PROGNOSIS
10 EPIDEMIOLOGY & MG INCHILDREN
11 NOTABLE PATIENTS
12 REFERENCES
13 EXTERNAL LINKS
**

Thank you for sharing :)

Not exactly sure WHAT is on wikipedia -- but, ever since I discovered that it could be edited by ANYONE -- I don't really trust the info 100%. Here are some guides that are PRIMO!!

http://www.uwo.ca/cns/resident/pocke...uscular/MG.pdf

http://www.myastheniagravis.org/guidedetails.htm

I ESPECIALLY "love" Dr. Nicolle's guide -- it covers just about everything!!

just a thought,
if it could be edited by anyone, why don't we start editing it?

alice

Alice, I think some MGers have tried that (editing Wikipedia) -- you get into a "tug of war". NOT all MGers "think" the same way -- believe it or not!!:D

You start having people dispensing medical advice -- and telling everyone that our condition is "totally" treatable with the proper medication. That ALL MGers can live totally "normal" lives. That kind of crap. (Can I say "crap" in here??):eek:

guess you are right.

and "crap" is OK with me.

alice

Me to!!!!

OOOHHH thats what I'm leading a normal life!!!!, which is why my Aunty just told me I sound breathless(oooppps sorry there's my sarcasm creeping back in again :-) )

Planet Mygra
 

I have to admit that I am not that great in geography and don't really know where it is.

but, possibly if you are somewhere in outer space, you may be able to meet a world leading expert in neuromuscular disease. I have every reason to think that he has been abducted by alliens, as more then 2 years ago, after he recieved the results of my tests, he wrote to me- your test results show of respiratory muscle insufficiency, and you would need to have a muscle biopsy, am in a hurry, but will definitely write to you next wednesday, when I return.

so there are two possibilities, either "next wednesday" hasn't arrived yet, or as I have said he could have been abducted by alliens, and maybe if you are lucky they have put him on your planet!

alice.

Alice, you have NO idea how much better you make me feel!!

BEFORE MG, I had such positive feelings about almost every doctor that I encountered. I never minded going to the doctor if I was sick -- was never intimidated -- or nervous. NOW, with all that has happened "thanks to MG", I have "white coat syndrome". My normal bp of 90/60 shoots up to 140/90! I even dread seeing my FAVORITE neuro -- who has done NOTHING but given me quality care and shown me every kindness. All of this "drama" thanks to a bunch of "ego-maniacs" at a BIG-NAME teaching hospital who treated me like a "number" -- a "number" without a brain -- a "number" without feelings -- a "number" without any purpose in life.

So, NOW I see that "they" even treat "their own" badly!!

I'm pretty sure your doc IS on planet MYGRA -- where he is the unwilling participant of a clinical trial -- bwah-ha-ha!!!;)