NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Thanks for the Support. (https://www.neurotalk.org/myasthenia-gravis/107901-thanks-support.html)

rezmommy 11-12-2009 01:25 PM

Thanks for the Support.
 
One year ago yesterday I was diagnosed with generalized myasthenia gravis. It has been quite a journey. I have learned so much about this disease and I am still learning. I want to thank everyone for your knowledge and your willingness to share. This site has helped me through a lot! What a wonderful group of people, thank you ~ Melanie:grouphug:

dog lover 11-13-2009 11:41 AM

Thanks for the support
 
Melanie,
I couldn't agree with you more!!! I was only diagnosed a few months ago and have learned more here than from any of my Drs. Glad we all have each other here for support.
Kendra

rezmommy 11-13-2009 01:17 PM

Kendra, you hit the nail on the head! I get all of my info. here, unfortunately my doctors have been a little behind in the MG information. :)

suev 11-14-2009 12:26 AM

'.........' Anniversary, Melanie!

Can't say Happy - cuz it really isn't an anniversary you want any one to have to acknowledge in the first place.

But then, can't say Un-happy -- cause it better to know and have a dx.

so -o-o-o-o-o

Let's just say '.....' Anniversary!!


Couldn't agree with you more about the folks on this site. How lucky we are to have a place like this to 'share and care'.

Sue

rach73 11-14-2009 04:33 AM

Hi Melanie
 
You are right about the forum its such a good place for support and comfort.

Im sorry that you have reached your first year anniversary of being diagnosed. Im three years of having ptosis on January 11th 2010. I think I will be burying my head in the sand that day!

Love
Rach

rezmommy 11-14-2009 05:58 AM

Well put Sue!

Hang in there Rach!

This is definitely the place for support and comfort.

AnnieB3 11-14-2009 09:38 AM

Melanie, It is very nice to be able to go somewhere for support like this. Doctors can only do so much for us. No one can relate to a disease like a person who has it! ;)

Can you believe it's been a year? Time just flies. And it doesn't get any easier as time goes by to say "no" to things your brain wants to do but your body can't. But, Rach, it doesn't help to bury your head in the sand just because a few doctors have decided to bury their heads somewhere else.

Annie

Pat 110 11-14-2009 12:20 PM

This site is just wonderful! I wish it had been around 11 years ago or I found it sooner, but I'm just glad I finally did. I'll never forget the first day I joined. I didn't know what a thread was.:eek: Luckily, it didn't take me very long to figure out. I wish I could just reach out and hug each and everyone of you! Thank you all for your support and friendship.;)

Hang in there Rach, you will get the help you so desperately need.:hug:


Big Hugs,
Pat

rezmommy 11-15-2009 07:49 PM

Thanks Pat & Annie !

maryec 11-15-2009 10:03 PM

Rach hope things start going better for you, I am also thankful for all my buddies on this site. What a great gift you all are !


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