Another Pain Option
 

I have read, and I do not want to release my own medical information:

You can take your muscle relaxer tablets, 1/2 a bottle, and grind them up in a coffee grinder or other small type grinder and put it into simple, cheap, plain cold cream or soft cream and then mix it. Then when you're doing a light massage, you have the masseuse use that to work into the painful areas, gently, and not too much, and you may see a benefit.

Also talk to your doctor about if you are diabetic, how you might be able to do your pain medication in a diabetic injection and it is cheaper also and easier on the stomach.

Everyone who reaches past a certain pain point really must have a pain management doctor, and they are usually anesthesia guys - there are others, like D.o.s, etc., but the anesthesiologists are the best, I think, if one can find a good one who understands the horrific pain of neurogenic TOS, etc.

I am just trying to hang on, hang in, I have no special insights on how to fight this - I do believe that every TOSer has more than just TOS - some of us have immunological things going on, or TOS triggers it - and like Dr. Brantigan told me, there are so many hundreds they haven't even named yet. So I think that trying something, seeing how it works FOR YOU, and trusting your own conscience, is the best way. I have listened to too many doctors who didn't know what they were talking about, and then just a few who did. Go with how your body reacts.

I try to get a walk in every night - that is my test as to how I am doing - that and whether I am frozen and can't move.

understand about the other things going on
 

at my physical i found out i have a bladder infection. since it hurts much less than my neck i had no idea. i wonder how many other things go unnoticed?

Agree with creams
 

Yes, Tam DR AGNEW in Santa Barbara uses creams created just for the patient by his parmacist for years. Dr. Agnew is a terrific Neurologist understanding the immedite needs of a TOS patient. I went to him for a year but it came to an end only because I just couldnt handle the drive, Phil had to drive up and back in one day which exhausted him for days, then it was cash pay since my WC didnt approve him & I dont have Medicare still. He also injestec my pect minor with anesthesia & a little steroids. It gave me such TOS relief for weeks. He is also very aware/educated on all the TOS specialists, surgeons, Dr. Collins & who to send you to when & if needed beyond his ability or for additional help.