NeuroTalk Support Groups - Hi! I'm a newbie here!

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Hi! I'm a newbie here! (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/109011-hi-im-newbie.html)

Hi! I'm a newbie here!

Hi! My name is TJ diagnosed with RSD about 5 months ago. Looking for the support and encouragement I think only other RSDer's can! Thanks to all here. Reading your stories, insights and suggestions have been a real inspiration too me. I was sooooooooooooooooo ready to just give up! You have all recharged my soul. Again thank you all!:grouphug:

Dear TJ,

Don't EVER, EVER, EVER give up.

It is hard at times, especially for those of us that are WC victims. I hurt myself carrying a heavy workbag at work because the (much younger) woman I was working with that day was pregnant and I didin't want her to carry anything - I tore my rotator cuff. That was a little over 3 years ago and my life has never been the same!! I am waiting on approval from the RI WC courts for ketamine infusions (since I am fairly certain that the evil souls at the Hartford who control my case have already denied the petition from my attorney). Next week I am traveling to southern NJ to meet with Dr. Philip Getson, who works with Dr. S of Drexel University and is reputed to be absolutely wonderful. It seems like I have been waiting FOREVER for this appt, but in reallity its only been a few months.

Please take care and keep in touch, that is what this board is for. We are all here for each other. Tell us more about yourself....

XOXOX Sandy

Hi TJ, and welcome, I am sorry to hear that you have RSD but am glad that you have found the site and hope that you will find comfort and answers here. Take care, cz

This was a delayed Thanksgiving for me this year as I ended up in the hospital with a blood clot / plebitis in my good leg (OOOpps! I mean my unchallenged leg. My PT told me to stop labeling my bad leg as bad and my good leg as good) so I am trying to come up with something else and the only thing I can think of is my challenged and unchallenged legs. Anyway I am so very Thankful that the RSD has not spread to both legs. They gave me antibiotics and 600 mg Ibuprofen every 4 hrs.This along with the Opana ER has actually lowered my pain levels and reduced the horrible swelling in both legs. So I really am singing praises :). I was in so much pain all over my body and felt so horrible when I finally gave up and went into the ER. Good thing I did! It's almost like being reborn when you go from a 10+ pain :( to a managable 3-4 level of pain :).Thanks again for a place to come that you can talk to others like myself that understand and can encourage. Look forward to getting to know all of you better.:grouphug:

Hi tjack! and welcome! I joined a few months ago and found this to be my home. Everyone is SO supportive and informed. Grammar doesn't really matter, nor does proper "community" talk. I have learned more since this I joined than I have learned from my collection of doctors, etc. Please feel welcome here. I'm glad to meet you, even though I would rather meet you under better circumstances. (sp?) Have a good night.

Hi TJ!
Do you know what caused you to have a blood clot? Are you on coumadin now to treat it? I had massive pulmonary emboli four years ago and have had two DVTs since then. I'll be on coumadin for the rest of my life. But part of that is due to the fact that my doctors figured out that I have an underlying clotting disorder. It was actually caused by an experimental medication that I was on for RSD- lenalenamide, which was not so kind to my liver. The moral of the story is that you should have a full panel run on all of your clotting factors. That way you can know if it is likely to happen again or if it is a one time thing.

Don't give up! Things can get bad, but there is always something out there that will make you smile. I am a firm believer in taking care of the mental as well as the physical, and am a big proponent of mindfulness and meditation. I have been on the brink of wanting everything to just end before, and meditating helps me to not be as stressed about everything. Check out this site. It's the UCSD Center for Mindfulness, and you can download guided meditations and "assignments" that teach you how to be less stressed out.

http://mindfulness.ucsd.edu/mbsr.htm

Hope this helps a bit!

Lynns

Welcome aboard TJack !

I second Lynns' recommendation for the mindfulness website - I have that website saved under my "favorites' and try to use one of the guided meditations everyday. U Mass also has a website for mindfulness, after I spent some time in there I links to support groups in every state:

http://www.umassmed.edu/Content.aspx...d&itemid=41254

Good luck to you. XOXOX Sandy

Ooops-

Sandy, I just saw this after recommending the UCSD program to you on another thread. Oh well. Now you know about it twice. And I learned something too!

Lynns :eek: