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-   -   So Confused (https://www.neurotalk.org/multiple-sclerosis/109435-confused.html)

poochie 12-01-2009 10:45 AM

So Confused
 
I really don't like this disease, the pain in my legs have been there for about 6 months, it wakes me up at night it is so bad I can't sleep, my legs have spasms, I have not had this pain before, yes the spasms, I don't walk good anyway, now it just gets worse. I can take Baclofen and Ibuprofen and that helps, do I just need to ware this out. I don't like the way steroids make me feel. I was dx the RRMS, but I have had MS for so long, since the 80's, I think I am going into SPMS. How on earth do you know. I had a neuro tell me several years ago that I was in the middle of RR and SP. I don't know, how smart does that sound, just wanting some relief. My GP took me off my cholesterol meds thinking that was making the pain worse, now I have that problem to worry about, I sound like I'm feeling sorry for myself, I really am not, just needing to talk to someone that understands. I guess I'll call my GP and tell him the pain is still there.

SallyC 12-01-2009 11:40 AM

Aw, Poochie, I'm so sorry you are going though this, right now. :hug: I also hate this disease. It has taken so many precious moments away from me. :mad:

Talking it over with you Docs, is a good idea. Try to get a plan of action going, to treat your symptoms and to feel better.

I completely understand and we are all here to support you..:grouphug:

Jodylee 12-01-2009 12:14 PM

Don't worry about complaining Poochie! We all do it :). It usually helps to talk about the things that are bothering us and to know that we understand :hug::hug:.

I agree with Sally (as usual :p). Talking to your doc's is a good idea. Keep taking the Baclofen and ibuprofen if that's what works for you.

I hope you get some relief soon :hug:.

NurseNancy 12-03-2009 04:28 PM

i'm sorry too for what you're going thru. it's not easy to deal with things like that.

i'd talk to your dr. good advice. maybe a change in med would help.
do you have an MS specialist in your area? maybe a 2nd opinion in the MS area would give you some other answers.
:hug: to you poochie.. hope you feel better. don't give up searching for answers. it doesn't matter what kind of MS it. just treat the symptoms.


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