cervical dystonia/spasmodic torticollis
 

I just found this support website. I have suffered with spasmodic torticollis for 10 yrs. I am 41 yrs. old and I have a husband, Paul, and 5 kids. Paul unfortunately was just diagnosed with melanoma cancer last March, which has raised my stress level significantly and my botox injections I have been receiving are not working any longer. My neurologist is checking to see if I have become immuned to botox, hopefully not..since I started botox injections about 3 yrs. ago I have finallly got my life back after being severly disabled to the point of being bed-ridden. I am fearful I'm going to relapse back to that.. for the last 3 yrs. I have been great! I have started my own home-business with the help of DVR and returned to college, which I should be graduating this month, but unfortunately I had to withdraw due to my pain level, mobility, etc. I will finish!! I'm determined..I don't give up. I'm a fighter by nature and I w:confusedwill not let this get to me.:confused:

Just wanted to say hi and welcome to the community. Someone will likely be a long who is familiar with your health issues. In the meantime, look around and jump in anywhere!

Hi i sick spasmodic torticollis, Folic Dystonia. For 5 years, now 33 . I want kids, but i m afraid, very very. I m cant live without Botox. Botox inject the neck every five or six months. After six months, are it very hard. My heart crying.
I m afraid, that baby suffer sicks, what I have. Afraid that I can not, live the entire pregnancy without botox :icon_cry: