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-   -   Cadasil diagnosis (https://www.neurotalk.org/new-member-introductions/109909-cadasil-diagnosis.html)

jgandee 12-08-2009 06:58 AM

Cadasil diagnosis
 
I have been having various symptoms for 2 years now. I have had two surguries for degenerative disk disease. After continued problems with fatigue, vertigo, walking, light sensitivity, eye issues, depression, memory issues and other things, they repeated a brain MRI. My MRI show over 25 small white matter areas. They have diagnosis this as Cadasil. They are arranging for insurance approval to complete the genetic testing. This is a rare disease and just trying to research more information, particulary if there is any treatment. I have an appointment at Cleveland Clinic in January 2010. Any information would be helpful. Thank you.

DM 12-09-2009 03:25 PM

Hello jgandee and welcome to Neurotalk.. Sorry I can't be of help w/your questions, but I just wanted to say that I'm glad you found us and I hope you take a look around and make yourself at home.
http://dl4.glitter-graphics.net/pub/...kkwodnwier.gif

jgandee 12-10-2009 10:35 PM

Thank you.

megatrends 12-10-2009 10:57 PM

I've no info about your disease but I offer support and a big welcoming hug!

azoyizes 12-12-2009 03:41 PM

http://i489.photobucket.com/albums/r...lcomeGroup.gif



hi jgandee, and welcome to neurotalk. i'm so glad you found us.

i had to look up cadasil disease, because i'd never heard of it before. I don't know if this will help, but maybe you can get some answers on the following forums:

http://neurotalk.psychcentral.com/forum32.html

http://neurotalk.psychcentral.com/forum2.html

I wish you well.

jgandee 02-16-2010 07:41 AM

Well, I got results back from the DNA test they do for Cadasil. THe results were negative. The next thing will be to get surgery on my thoracic spine. Hopefully, this will fix some of the problems.

Alffe 02-16-2010 09:25 AM

Hi again and here is the link to our Spinal Disorders Forum..http://neurotalk.psychcentral.com/forum22.html

Hopefully you'll get some answers soon. :grouphug:

(Broken Wings) 02-20-2010 07:30 AM

Hi, and Welcome to NT

I hope you're doing well these days.

It's always good to know what you don't have. :D

Surgery is no fun. I pray you have great results.


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