NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   New Member Introductions (https://www.neurotalk.org/new-member-introductions/)
-   -   Just wanted to Introduce myself and Shawn (https://www.neurotalk.org/new-member-introductions/110138-introduce-shawn.html)

JFlynn 12-11-2009 10:06 AM

Just wanted to Introduce myself and Shawn
 
Hi everyone,

I am the father of an 8 yr old boy (Shawn) who was recently diagnosed with Mito Complex 4. We have been trying to figure this out for 8 years. amazing it took this long to get tested for this. We have always been told that he just has low muscle tone. He has been taking the Co-enzyme Q10 (we found some stores with flavored gummy versions) and next month we will be visiting Childrens Hospital Boston to see about the Mito cocktail.

I hope to get info and feedback from others that might have some insight or info to share on complex 4.

JFlynn

ewizabeth 12-11-2009 12:29 PM

Welcome to NeuroTalk JFlynn and Shawn!! :Wave-Hello:

I'm so glad you found us! There are lots of nice folks here as you'll see. I don't know anything about that condition but chances are there are others here who do.

I hope the treatment will help you to feel better Shawn! :hug:

MelodyL 12-12-2009 04:59 PM

Quote:

Originally Posted by JFlynn (Post 598655)
Hi everyone,

I am the father of an 8 yr old boy (Shawn) who was recently diagnosed with Mito Complex 4. We have been trying to figure this out for 8 years. amazing it took this long to get tested for this. We have always been told that he just has low muscle tone. He has been taking the Co-enzyme Q10 (we found some stores with flavored gummy versions) and next month we will be visiting Childrens Hospital Boston to see about the Mito cocktail.

I hope to get info and feedback from others that might have some insight or info to share on complex 4.

JFlynn

Well, hello to you and a big hello to Shawn.

I am now going to look up Mito Complex 4 (I have never heard of this).

Just wanted to welcome you to our little corner of the world.

Hope you find some answers and meet some friendly folk.

Take care,

Melody

azoyizes 12-13-2009 02:37 PM

http://i489.photobucket.com/albums/r...WELCOME-vi.gif



hi jflynn and shawn, and welcome to neurotalk. i'm so glad you found us.

this is a super place with lots of friendly, caring, and helpful people.

take a look around, jump in anywhere you want. ask a question, and i'm sure that someone will come along either with an answer or where to find one.

To get you started, here is a link to general health and rare disorders:

http://neurotalk.psychcentral.com/forum2.html

i wish you and shawn the best. :hug:


All times are GMT -5. The time now is 03:45 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.