Noise sensitivity
 

Noise is a real problem .I've had epilepsy since birth and always statled easily due to it, but I have days where loud noise can put me in tears,especiallly since the temporal lobectomy.Does anyone else experience this?

Hi dogwood,
Welcome to the forum! What you are discribing sounds like you might be having audio seizures. This happens when certain sounds can trigger a seizure. Just like you I had a right tempral lobecetomy back in 1994. This helped reduce my seizures.
From this point on take note of what kind of sounds you hear that trigger the seizures, is it a high pitch sound, low pitch sound, or is it just a lot of noise all at once. You should let your neuro. know about this and have them do a special e.e.g. on you where they will play different sounds to find what sounds trigger seizures the most.
I've found that since my surgery a low pressure in the weather can trigger seizures for me. I just got done in a medical study and you might want to try this. Take your temp. 4 times a day at the same time when you first wake up, around lunch time, early evening, and before you go to bed. Also take your temp. each time you have a seizure. keep track of the time and your temperature. Also keep track of each time you yawn each day. They have proven that yawning helps cool the brain down so the fewer times a person yawns the warmer the brain and it can fire up the neurons in the brain leading to seizures. If you get a warning that you are going to have a seizure put a cold wash cloth on your face and the back of your neck and take my word it will stop your seizures. I couldn't believe it when I tried it for a month but it did wonders now we are working on a micro chip to help cool the brain down and stop seizures as well as help others with neurology problems we just have to get the FDA's approval.
Wishing you the best of luck and May God Bless You!

Sue