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-   -   Sorry to pester. (https://www.neurotalk.org/trigeminal-neuralgia/112718-sorry-pester.html)

supermoo 01-19-2010 08:15 PM

Sorry to pester.
 
Does TN become constant? Its starting to really drag me down now. I have enough issues with my disabilitys and pain. UK nerolagists are crap shove pills at you with out any investigation. soz rant over. x

jjlsongbird 01-20-2010 11:58 AM

I don't think it usually becomes constant. BUT while I was being diagnosed when I first got TN, before I actually got put on medication, my pain did become constant. Since then, even when the pain has returned, it has never been constant, perhaps because I get on medication fast and have only breakthrough "zaps" as I call them.

Random 01-20-2010 08:44 PM

Quote:

Originally Posted by jjlsongbird (Post 612562)
I don't think it usually becomes constant. BUT while I was being diagnosed when I first got TN, before I actually got put on medication, my pain did become constant. Since then, even when the pain has returned, it has never been constant, perhaps because I get on medication fast and have only breakthrough "zaps" as I call them.

My pain has been constant since it began in late October.

jjlsongbird 01-21-2010 08:34 AM

Are you taking seeing a neurogist? Taking any medication?

supermoo 01-21-2010 12:40 PM

Have seen a neurolagist mostly about other nerve problems disability.I have
been suffering from TN on and off for 12 or more years But they have not looked at my face just pushed pills at me:( They have never looked for a cause. Have been perscribed Tegratol but I am scared of taking it because of side effects like nerve damage over time and breathing problems. My nerves are pretty screwed any way cant afford for them to get any worse. And lungs or small I only have 34% use of them. I'm just a pain. xx

jjlsongbird 01-22-2010 04:59 PM

I never liked the side effects of Tegretol, but hadn't read of nerve damage or breathing problems associated with it. It is supposedly the most effective medication for TN, at least that is what my neurologist says.

Doodle bug7 01-24-2010 09:44 AM

Date with the Devil
 
I am so allergic to Tegretol that I break out in big red dots all over and it looks like measles..They stay for about a week.When I learned that I had TN, it was from two hard jolts like lightening through the left side of my face. I was petrified. My eye, ear, nose, and throat Doctor made the diagnoses. He put me on 100mg. Dylantin and 30mg. Amitriptyline at bedtime. This is what held me for TEN yrs.
I had almost forgotten about it. I just took my little pills at bedtime and went on with my life.It was easy enough.I had no idea what lay ahead for me. I mean It was under control, right? Soon after the ten year mark, The horror began as if I had a date with the devil himself..........
Doodle bug7

supermoo 01-24-2010 06:08 PM

I'm sorry Doodle bug. I Have had little help with the pain for 12 years. Just wish they would try and find a cause. xx

julie g 02-11-2010 11:53 AM

Quote:

Originally Posted by supermoo (Post 612365)
Does TN become constant? Its starting to really drag me down now. I have enough issues with my disabilitys and pain. UK nerolagists are crap shove pills at you with out any investigation. soz rant over. x

I'm new and don't know much of anything yet but mine is constant just worse at times but always there then numbness and my burning head is always there probably not what you wanted to hear but at least your not alone:hug:


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