saw this today: MS Pills show promise and risk
 

They keep talking about side effect risks. like 6% of Avonex users have serious side effects, vs 9% of Fingolomoid. They keep throwing out that the herpes virus is gonna be a problem, and 2 folks actually died from unchecked herpetic infections! OMG! Eye swelling in the pill, brain shrinkage with the shot? :eek:

Thanks for the info.

I know little about meds, but everything I've ever tried has had an attached protocol with dreadful side effects listed. So far, nothing (tried Novantrone, 4-AP also with nothing but vomiting with the Chemo)but Rebif with "flu like" symptoms" has had side effects effecting me, nothing helped either. I have a RR friend who was in trial and loves Fingolimod. For PPs like me, efficiency is still in trial, always hopeful but know I'm not RR and inflammatory, may meet (again) with disappointment. Will try if I can, all I can do. Herpes sounds better than MS to me.

Jim wont be taking this new pill anytime soon. His doctors are reluctant to give him anything after his problem with Novantrone. The side effetcs are low but not worth the chance. We'll wait a couple of years and see what happens. Besides, he's SPMS. :wink:

So Beta stays his friend for awhile. So far no side effects and that's a good thing to us.

If you read the entire prescription information for all of the CRABS, there are many other side effects listed beyond the ones that many people endure.

I am not sure what I will be doing since I have not been able to tolerate any of the CRAB's or tysabri. Allergic reactions, antibodies ... Neuro just keeps saying that I am stable, and therefore, there would be risks to trying a new oral med. In the next breath, he seems to suggest I should try one when they come out. :rolleyes:On the other hand, they are not sure I am RR since I have had not major flares since my first one.

I guess I will just wait until they are approved, and then make an informed decision. At this point, I am leaning toward trying one of them. My next MRI is scheduled for May. It will be one year. I did not have any new lesions last May, but I did have four new ones in the previous year.

The New England Journal of Medicine had some interesting articles about these treatments. My thoughts after reading what I could understand, lol, were that they seem very promising but the side effects sound quite a bit more serious than with the ABCRs.

I wasn't too impressed with an oral treatment just to avoid injections unless it was significantly better than what we have but it looks like they may be on to something. Fingers crossed.