Hi all, formally known as msmommie
 

Hi everyone, I haven't chatted with any one for awhile. I used to come on here under msmommie. To bring you all up to speed, I made it my first year since I got dx without a flare up. November made a year, unfortunately I am heading into one now :( . I had to quit taking my copaxon last August because like the Avonex I had to many alergic reactions to it. So now I am going with the flow I guess you could say and hoping I don't get into to much trouble with my little demon. Take care all.

hi issa :welcome_sign: to NeuroTalk.

i hope this flare is a short and not bad one. or it just doesn't end up being one.

Hi!
 

Hi Issa, glad to see another VA person here. You said you have gone a year without a flareup. How long ago were you diagnosed? Did you continue to have symptoms during that year or have any progression? I know it is different for everyone, but I am at the middle of the beginning. By that I mean that I think I have had 2 or more mild exacerbations, but didn't recognize them and have had symptoms for years. I was just wondering how you have progressed.

Hi, Issa...
 

Hi, Issa. I have finally been dx with MS, and am waiting on the trainer to show me how to use the Copacone autoinjectables. I believe I am finally beginning to come out of a flare-up type of thing that I have had since August, and am looking forward to doing something besides curling up in my recliner. I am so sorry to hear that you are going into one. Hope it doesn't last long. Welcome back to this site. We could all use another friend.

sallyb

Hello Issa,
Glad to meet you. Welcome to NeuroTalk. I hope you begin to feel better in a jiffy.

All the best,
Chris

Hi Issa, welcome! Hope you turn out to be wrong about the flare. Just maybe you will be. I have guessed wrong both ways before.

Good Luck,
Virginia

Hello
 

Sorry I have been a little late getting back with you all on your post but this has been a long week. I spent this whole week getting 1000 mgs of steroids by IV for the last 5 days. I know it is suppose to help but I think that it makes you feel just as bad going through it. I was dx in 2002 and have had a flare up every year except for 2005 (which I don't know how I did that without being on ABC meds.) I am not currently taking anything right now, most everything I have tried makes me really sick or I become allergic to it. I am hoping my recovery will be swift and I can get back to feeling like my old self again what ever that may be. Take care and thanks for saying hi.

Hi to Issa
 

Hi, Issa. I don't come here too much, so I just saw your post, and want to say I'm glad you are here again. It took me a long time to find this spot.

I am having one of my flares, but I can't take any medications because of porphyria. I am at my wits end, and no good doctors here. Just praying for help.

Mariel

Hi Issa,
Steroids for 5 days! Yuck! I hope you feel better soon. My neuro put me on a one day, once a month IV pulse for 6 months to settle down my MS when I was having many attacks in a row. Now there are a few trials going on doing the same thing. That may be an option for you if you are not on a therapy. It wasn't too harsh.

After I had my kids I started doing oral Decadron once a month for 5 days until Copaxone kicked in. I was very worried about a postpartum attack but didn't have the time or energy to be hooked up to an IV. That worked really well but was not as strong as the IV.
Take care,
Jean

Hi
 

I think it is hard for everyone some point in their life with MS to find a good medicine to use and not worry about what will stem from it. Me on the other hand happen to get the wrong kind of disease :rolleyes: because I can't seem to tollerate just about everything I try whether it is for my MS or simply to control what all else comes with MS. I quit taking everything that I was on which was about 12 different meds for a list of thing to just taking my ritilan which is for my energy. I just seem to get to sick from all of it body and mind. The steroid treatments were pretty harsh this time caused a lot of problems, but I think it is getting better (slowly.) Hope things work out well for you all and many blessings to you.