Anyone have "hot" and "cold" rsd?
 

I was wondering if anyone out there had both hot and cold rsd. My foot and leg for the past year has mostly been differet shades of blue and purple and ice cold. Last night they were bright red and warmer than my other leg. Now this morning they are a reddish-purple(closer to my normal rsd color) but still warmer than my "good" leg. Ive seen people talk about warm or cold rsd but not both. Figure someone out there has had this happen

Maybe it's a flare-up? Might be if you have more pain than usual.

If not...

RSD is divided into 3 stages, stage one is called the hot stage, stage two is where you can go from hot to cold and back again (the colors sort of have a marbled effect too), and stage 3 is the cold stage. Not everyone's RSD follows these outlines, though.

I don't know as this is all so new to me. My hand and arm have always felt like they were on fire but the past wk I feel like a freezing bone pain,cold. My hand/arm go from red blotcy, purple to very white. It has spread up to my shoulder but the only swelling and discoloration I get is my hand and forearm.

I have rsd in my hands allthe wayup to my shoulders on both and i do feel the very to the point where i have to take off everything. Like now im very cold. I get the blocthes on my upper arm both sides...Usually that happens when im flaring really bad.

KS here..

I gotz to say..my dr. has said I have the most aggressive form of RSD he has ever treated and as far as temperature changes and differences..I am all over the map..hot one minute..cold the next.. I get so hot I turn into water but my feet could be cold..weird!! But ..we know RSD is such a treat..our thermostats are just screwed up... I can't aquaint a flare verses regular ole' RSD... all of the time.....

Hugz,Kathy:grouphug:

I too have both hot and cold at the same time and man it really gets bother some. From my head to my back I am as hot as I can be to where if I take my temp it is 100-101 degrees while my hands and from my knees to my feet are so ice cold that they are turning blue. I was told my circulation is just getting that bad. The weird thing that I notice is if I get my hands and feet to warm up then my mid-body will cool down. Have both and cold and hot I hate, I would rather have one or the other then I could either put on blankets or take them off, while having both I have cool packs on my back and head and have my legs and arms wrapped in blankets.

Niki

I have often stated that how can my foot "burn' and "freeze" at the same time! So ,yes I am right there with you-Carol

Hi. I am the same. I have generalized CRPS and my initial injured arm still turns purple and cold and my legs, feet and other arm usually turn red and hot, but the also turn cold and purple. It really thru me off when it first happened because i am so use to purple and cold. momof4

SO>>>>>
 

When is it called a "flare" as I can't tell the difference..Temp is all over constantly and never ends!! Help me... KS

Hello. I am new to this forum. I have RSD and it is nice to be able to have someone to relate to this problem. My RSD is in the left arm. The worst part is that horrid burning pain, but the cold and hot are bothersome too. Sometimes when I have a flare up the arm itself will turn its lovely blotchy red and purple color but the back around my shoulder blade will feel like I am on a heat pad. In the beginning I thought I was going crazy until my workers comp doctor showed me the etiology and what is going on. It scares people to look at my arm, let alone touch it because the temp is so cold.