Hi All
 

I have only just found out about and joined this site. I'm not sure if this is where I should be:) I hsve had chronic pain for around 18 months now. It began with vulvodynia, which was incredibly painful but seems to be under control with gabapentin. Now I have developed severe and chronic Achilles tendonitis in both ankles. My Dr is useless and will not refer me for any scans. I hsve had thyroid checked and am on meds for this. There are painful lumps on both my ankles which are very tender to touch. The pain feels like someone is burning the skin off my heels. I am on multiple pain meds, but nothing helps. I was referred to the local Pain Clinic, where I have now been given a 9 week course in exercise and pain management. It may help, but I really think I need further investigations done. I'm really hoping that someone within your community may have had similar experiences to mine. I'm not looking for a miracle, just want to find out what this might be and how to treat/manage it if possible. BTW I am in the UK. I have a son with autism and I research the biomed side of this. I have seen so many similarities between the physical stuff in autism and myself. Sorry, I have gone on a bit too much:D I just want to chat with others in the same situation.

hi quinolineblue and welcome to NeuroTalk :)


we are pleased to have you with us

Cheri

ps I lived in London for many years

Nice to meet you and welcome to the forum.

I'll copy this and post it on the General Health Conditions and Rare Disorders Forum for you.

the link to that forum -
http://neurotalk.psychcentral.com/forumdisplay.php?f=2

Thanx
 

Thanx for such quick responses:)

Cheri - where did you live? I used to live in north west London but we moved to Reading (50 miles west) as we wanted more space. Now we've got a little more, all we've done is fill it up:Sigh:

I will look on the forums you mentioned Jo55 - thanx for doing that for me:)

Hoping to meet more of you all soon.

Brenda

Brenda, I lived in Chelsea, just off the Kings Road. (My first apartment was in Putney, and then I moved to South Kensington)

I sooooo loved living in England! Would never have left had I not married a Yank who couldnt handle the weather there:rolleyes:

Now I live in the Florida swampland, not far from Disney World, and although I am very happy here, I would move back to London in a heartbeat!

Welcome and I hope you get some answers and some hope for that pain. It's good to have you here with us!!
Wish

Welcome to NeuroTalk :)
 

I have a couple of thoughts for you and the ankle pain you have.

1) thyroid imbalances can cause tarsal tunnel syndrome--which is accumlation of fluid/tissue under the tarsal ligament (also carpal tunnel of the hand).
So you want to be sure your thyroid medication is working properly and at the right dose. Billye at PN here put up this excellent site on the subject just recently:
http://www.myfootshop.com/detail.asp...nel%20Syndrome

2) if the "lumps" are on the tendon itself they can come from shoes rubbing there, or they can be lipomas (fatty tumors) and need to be removed.

3) I had a lump the size of an egg on my left Achilles tendon (from being banged from behind with a shopping cart), and what worked for me were inexpensive pain patches that you buy in the drug store called Salonpas.
I had gone to a podiatrist with no luck...only a recommendation to take ibuprofen. The patches worked within 7 days for me.
http://www.painreliever.com/salonpas.html
I used only the one with methyl salicyclate in them. Others with only menthol do not have the anti-inflammatory actions. So if you look around there in England for a similar product, pick one with the same active ingredient.

Also Neurontin can cause fluid retention, and if this happens in the feet, the nerves get compressed and can flare up. Anything causing edema of the feet can cause pain.

These are only ideas I have, from experience. I hope you find a solution.
You are welcome to visit our Peripheral Neuropathy forum for further support.;)

Hi quinolineblue
I just wanted to give you a quick Welcome to Neurotalk~

There are so many nice people here.
I hope you can find some help with your problems !

Hi Brenda!
 

Welcome to the NeuroTalk forums! I'm glad you found this site. There are a lot of nice and helpful people here, and I hope you make some friends among us. I look forward to seeing you post here in the future! :)