NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- CSF Leak (https://www.neurotalk.org/csf-leak/)

- - csf leaker (https://www.neurotalk.org/csf-leak/114553-csf-leaker.html)

I have only posted one time here with one reply, where is everyone who suffers from this? I have done so much research I think I know more than the docs do around me!!!! Anyway I have now contacted doc Schievink and sent films and reports requested, yes they were very nice as everyone said. I am now waiting to hear back after they review it all. I am hoping to get some help from them because my testing does not show a leak anywhere!!!! I have all the symptoms and more!!!!! So of course no one believes that this is what is wrong. Please we need more people to share stories. I will try to keep updating when possible. Thanks

your in good hands with Dr Schievink

best wishes

Quote:

Originally Posted by Traci1 (Post 621062)

I have only posted one time here
with one reply, where is everyone who suffers from this? I have done so much research I think I know more than the docs do around me!!!! Anyway I have now contacted doc Schievink and sent films and reports requested, yes they were very nice as everyone said. I am now waiting to hear back after they review it all. I am hoping to get some help from them because my testing does not show a leak anywhere!!!! I have all the symptoms and more!!!!! So of course no one believes that this is what is wrong. Please we need more people to share stories. I will try to keep updating when possible. Thanks

i have had the same situation. my leak is hard to show. been out to shievink but only moderate success. now leaking again 6 years later..i know so many doctors and info andd fell like i know more than them as well!