New member and new symptoms
 

Hi everybody, My name is Tracy. I'm looking for some direction on a symptom I'm having and from which I'm finding little relief. That symptom is that my face, nose and air passages, mouth and tongue all feel like they are freezing cold... as if I am breathing in Vicks VapoRub in every breath. The areas are not numb and they do not tingle... they just feel freezing cold (my sensation) but aren't to the touch. My teeth are very very sensitive, even to air, but cold liquids send me thru the roof. The first 5 minutes after I wake up, the feeling is gone, only to return quickly and for the duration of the day into night and going to sleep.
My background includes: Graves and Hashimotos thyroid disease with radiated thyroid (nothing left) 2005; I'm on 120mg compounded Armour Thyroid daily. My FT3 and FT4 are low-normal, but my TSH is very very low anyway (.2) . This to me is clue #1. Why is my TSH so suppressed with low-normal levels of FT3 and FT4. Since radiation I have had sustained hair loss that shows no sign of relenting no matter what my dosage of thyroid hormone has been. All of my physical ailments started upon RAI. Could something pituitary have been kicked in and happening all this time? Over these past 5 years I have corrected an Iodine deficiency, developed gluten- casein- and soy sensitivities, had difficulty excercising as my muscles fatigue very quickly and I shake, and have held a fatigue level that requires 9 hours of sleep each night. I awaken very very tired each day. Endocrinologist says I'm just fine by my labs tho he'd like to see my TSH come higher and wants to lower my thyroid dose (AGAIN!). Even if that means taking me to below-normal range.
The one thing I'd like to know about is the facial coldness. It could be 80* and my face feels like ice to me. Any breeze feels like a cold wind slapping me. I guess my next step is a neurologist... anyone have this issue?
Thank you so much.

Hi Tracy and welcome to neuro talk,

Its a wonderful place full of kind and helpful people.
I'm not really sure where to direct you to get help, but I know that someone will be along soon to help you out, theres always someone who can help.

Kate

Welcome to NT

So sorry you're dealing with these strange and painful sensations.

Here is the dental forum:

http://neurotalk.psychcentral.com/forum89.html

They have had very helpful people on there from time to time. You can research old posts too.

The general and rare conditions forum:

http://neurotalk.psychcentral.com/forum2.html

I hope you find answers and get relief.

Thank you to both of you... I'm learning my way around a bit. Haven't found anything with the "cold" sensation symptoms, but I'll keep looking. :-)

Hello, and welcome to NT! I see you're already finding your way around--that's great.

This is such a great place with lots of friendly, caring, and helpful people. We're so glad you found us!

Welcome,

I believe that a low TSH and low FT4 and FT3 indicate hypo -pituitary.

MOst endos don't know how to deal with this so you might want to find someone who is experienced with this.

Thank you very much. If an Endo doesn't deal with hypo-pituitary, who does? Neurologist?? I thought pituitary, too. Much appreciated...