I feel completly overwhelmed this week by this stupid disease.
 

Between the doctors, the paperwork for disability, the fighting with medicaid, the mri, the more calls to the doctors, the uti, the broken back....


And everywhere I turn I seem to be slapped with more bad news. I just feel overwhelmed all of the time lately. The fatigue is kicking me, and of course the pain pills don't help with that. I swear all I want to do is crawl into my nest of pillows and stay there forever and never come out again!

But I have stuff to do and a kid to take care of, and bills to pay, and doctors to call, and insurance battles to fight, and more scheduling, and .... well, you know, LIFE that must go on no matter how much I want to just push the pause button and take a moment for myself.

I am in a rut! I think it is time to call for reinforcements. Might talk all the friends into coming up for the weekend to hang out.

I think calling in for reinforcement is a good idea. You have been handed quite a bit lately and hanging out with friends this weekend may really take some of the burdens off of you so you can relax.

The "pause" button is great too. I have a pause button - not an easy button, a pause button - I push it when I just need time to myself to regroup. For me, it works great. But, then again, I don't have a 6-year old under toe.

Hang in there Legz and take of you. :hug:

Legz, you need a time out from all of the stress of the last few weeks...

Time to rent some funny movies, get out the beer and popcorn, and escape...:hug::hug:

agreed! take some ME ME ME time. :hug:

Just now read this... wondering if things are doing any better for you. I hope so. The thing that gets me is how I can be going along keeping my chin up and staying positive...then without any warning..... everything comes caving in. I hope you have been able to dig yourself out and on the road to things seeming more manageable. Hugs... :hug: :hug: :hug:

Oh dear friend that was last week.

This week: I have a sick little one who has strep, an inner ear infection, and 2 new teeth coming in.

And I have: strep throat, a UTI, MS, PMS, arthritis, neurogenic bladder, 2 broken bones in my back, I have to go in for bone density testing today because they think I have osteopenia (if that test comes back low, I have to have surgery on my back), 2 more MRIs tomorrow....

I know there is an end to all of this, but I am having a really hard time being positive and upbeat! It is a LOT to handle at one time.

I hope your doctor has stopped recommending IVSM for flares. It's brutal on your bones. Teeth included.

I have a friend who has MG (and used IV steroids too often) and her bones are like those of a 90 year old....and she is only in her 30's! :eek:

Ironically, we stopped the IVSM because it made me sick and didn't do anything for the flares. Well, it did do something, the last two times it made the symptoms worse.

I know how your friend feels. I told my mom last night I felt lik an 80 yr old woman with a 29 year old shell. Her response "But you look so good!" did start a laughing fit.

And I learned my lesson. Last week i was overwhelmed and frustrated... this week life decided to remind me that it could always be worse.

:hug: ...More HUGS to you... :hug: