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-   -   Think im Celiac need advice. (https://www.neurotalk.org/gluten-sensitivity-celiac-disease/115697-im-celiac-advice.html)

MetalMX 03-01-2010 02:16 AM

Think im Celiac need advice.
 
I have hashimoto's Thyroiditis and i have seen a neurologist who diagnosed peripheral neuropathy and i believed it was attributed to this once i started on thyroid replacement my neuropathy symptoms significantly improved. BUT when i eat gluten containing foods like today after one hour i start getting tingling and burning in my calves, back, arms and a huge worsening of neuropathy symptoms i also feel very weak and freezing cold with goosebumps all over my body i just don't feel right and can't do anything is this consistent with Celiac disease?

I'm aware hashimoto's thyroiditis has a strong connection with Celiac Disease.

I now follow a gluten free diet but these same extreme symptoms occur everytime i put something in my mouth which contains gluten. I also have problems with muscle weakness/poor muscle tone, gas, stomach distension and bloating, feeling full fast and food cravings and smell/taste loss which isn't attributed to zinc deficiency.

Can someone also list the symptoms they experience with celiac disease?

Im planning on doing the enterolabs celiac test to decipher whether or not i have celiac or if this is simply gluten intolerance.

I have done a test for leaky gut called the lactulose/mannitol challenge test which was negative but it did confirm that i did have a mild form of malabsorbtion 9.1% (9.5 - 20.0) which could be related to celiac

jccgf 03-02-2010 08:22 AM

HI MetalMX,

Sounds very likely that gluten sensitivity is contributing to your peripheral neuropathy based on everything you describe. I've heard many others say they get symptoms directly related to gluten exposure. Your history of Hashimoto's Thyroiditis already puts you in the high risk category for gluten sensitivity, combined with your symptoms~ extremely likely.

Enterolab cannot diagnose celiac disease (which requires a positive intestinal biopsy) but does diagnose gluten sensitivity, and can tell you if you have the genetics most associated with celiac disease or genes associated with non-celiac gluten sensitivity. At this point, your "self test" has probably told you all that you need to know, but the Enterolab test should be able to confirm it for you.

I'd like to suggest you also be tested for vitamin deficiency that can contribute to PN. Gluten sensitivity can cause cause neuropathy and other neurological symptoms from both direct immunological attack and from nutritional deficiency. Having strong levels of these nutrients important to nerve health may also help your nerves to heal. Some people I've known have experiences significant relief from their pn with a gluten free diet. Sometimes casein and other food sensitivity are involved.

Quote:

"But the two things which are relevant to CD are nutrition and immunity. People with CD have nutritional deficits because of malabsorption; common causes of neuropathy are B12 deficiency, B1 deficiency, B6 deficiency, and Vitamin E deficiency. Neuropathies are also commonly caused by the immune system through autoimmune mechanisims."..."Latov commented that 20-25% of people with CD might have neuropathy."
Celiac Disease and Peripheral Neuropathy, Norman Latov, MD, PHD 2002
You can also check out The Gluten File linked in my signature. I have a page devoted to neuropathy, and also check out the B12 deficiency page, and the page on The Grey Zone discusses Enterolab testing.
http://jccglutenfree.googlepages.com...eralneuropathy

Sounds like you are on the right road.

jccgf 03-02-2010 08:27 AM

Regarding symptoms, your actual question, some 250 symptoms are associated with celiac disease! Everybody's list may read a little different. Certainly all the symptoms you mention are among common symptoms.

Check out some of these overview articles for various symptom lists. Essentially anything associated with celiac disease can be associated with non-celiac disease, except villous atrophy. I really like the first AAFP articles for good comprehensive articles, but the NIDDK overview is nice because it is very concise. There are also some specific to peripheral neuropathy, and also some to gluten sensitivity and neurological disease in general. Let me know if any links don't work for you. Sometimes they expire and I need to reset them!

http://jccglutenfree.googlepages.com/overviewarticles


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