NeuroTalk Support Groups

Quote:

Originally Posted by LizaJane (Post 260117)

My neuropathy began in 1996. By 1999 I had two abnormal EMGs. I think had a bunch of other abnormals. I went to Mayo and had more abnormals.

Today I had an EMG as preparation for spinal surgery and the sensory nerves were normal. I haven't gotten the final report, but he neurologist who did the test said all nerves were normal, except my peroneal, which have never been normal. I do have a new L5 radiculopathy with denervation of the L5 muscles on the left, but it's not new enough to be causing my pain. (that's from the spine)

After seeing the results, one of the neuros said: That means the original diagnosis was wrong, and you never had neuropathy!

Yah, right. I told them I had learned how to care for it--the secret is feeding the mitochondria needed to grow axons (CoQ10, acetyl L carnitine) and taking antioxidants to keep inflammation from causing harm. In addition, keep using the muscles, whether you feel them or not. That was the secret I learned on this forum.

And really, my symptoms are so small compared to 10 years ago. Yes, they're not gone, but they are not that significant.

It can be done. If you've got an idiopathic small fiber neuropathy, or long fiber, and don't have an ongoing CIDP or Sjogren's picture, your peripheral nerves can heal.

This is such great news. I am a newbie member to this group, and recently diagnosed with small fiber neurapathy due to a medication reaction from cipro. I have been in a great deal of pain and discomfort and at a loss of where to start to consider supplements, that may facilitate nerve growth.

I have been on Lyrica which has provided me with some relief, but also has given me other weird symptoms like nausea, no appetite, blurry vision and extreme muscle weakness and flu like symptoms. So I am attemtping to decrease my medication along with some ativan they have given me. Unfortunately the symptoms give me such bad feelings, that my anxiety level has risen substantially and I am finding I need some support. Has any medication helped anyone?

I have felt hopeless re: my nerves being able to repair themselves. So when I stumbled upon your website I had a glimmer of hope. Might you consider sharing more about how the supplements helped you and specifically what brands you utilized? How long did it take before you began to feel better on them? What alternative therapies did you ever use for comfort measures for pain and discomfort?

I would appreciate any information you may be willing to share.

Thanks so much,

Patty