Going to the M.S. clinic soon.....
 

:(Finally heard from my crack team.The same people that put me through the mbp8298 study.That left me a wreck...Now after watching me go thru that I guess they want to be on my side again.Just wondering if anyone can help me come up with what I should say.I don't want to sound too bitter.During the study they saw I was having problems but they were on the side of the study.So now I get my Dr back but I just wonder where did he go for 3 year's...:(

Im sorry you have lost faith and trust in your MD. that stinks!

Take a list with you. Write down everything you want to ask, and refuse to leave till you ask them. Put the most important ones first.

Is this MS? Why do you think it is or isnt MS? If not MS, what is it?

What medicine will they reccomend for you. not just the injectable stuff, but also the muscle relaxers, or anit anxiety or other such stuff. Will they be willing to be the ones to give you meds to help control this, or will they count on your regular MD to do that?

I am sure these good folks are going to come up with loads of good suggestions. you came to the right place. :hug:

Maybe the doctor felt like a doofus and was afraid to call you. I agree with Dej. Take a list and get all your questions answered. And check back in with us to keep us posted. :hug:

What they said...

My appointment is on tuesday but I am so depressed.The only treatment in the 26yrs I have been going there is a pep talk.Ive been in 3 studies and taken just about all I can take.Makes me wonder when did they give up... I am starting to wonder if I should not put any hope into a pep talk.Just a long trip to tell me what I've lost which is hope:(I think it's better if I cancel.What would you people do?

It looks like you might be in a last minute manic - no problem. Go to the appointment. If you remain strong; It can't hurt you. It would seem you may have a reason for hope so take it and fly with it my friend. Do as prior posts have told you and take all. All the info you need is in prior posts. Good Luck - all prayers with you. :hug:

Be strong, and have a good idea in YOUR mind what you expect, and want from this visit. If you feel dismissed, or jerked around, you can always go to a new MD.

Take your list of questions.
Take a person with you to help with a clean set of ears
Take a list of your current symptoms
Take a list of what you expect from them. ask if they can do it.
Take a list of ALL of your current meds/suppliments.

come back and tell us all about it. We are cheering for you! :hug:

i couldn't have said it better than dej just did.
mention your depression too.

good luck with your appt. please update us.

:(Tomorrow is the day 3yr's ago I started a drug study that has left me wrecked..I could walk in with a walking stick happy to start my 4th study!:)Now I'm left with a dark depression and not able to walk.They got me a Psych but he left the hospital after 3month's.I wasn't told till I left 4 message's all unaswered.His office sec said that it wasn't her job to notify me:confused:After 2yr's of saline water a week be4 the real infussion I thought I had a stroke:confused:My neuro thought it was transglobal amnesia..I did recieve the real drug but no change.They canceled the study in Aug over the phone:mad:They saw me 2 wks later telling me that the psych is back:confused:I'm should be glad.....:(after that I get a letter instead of a thank you they want me to fight to keep my license:confused:Now after all that they want to see me tomorrow........I'm so depressed now I don't know what to expect:(It's 200 miles to another clinic and 30 to this.No hope just more stress..I am so sad don't know what's I can do anymore...:(But write...........Jim
see my other post's on M.B.P.8291 Thank's

Much luck for tomorrow, Jim. Let us know how it goes.. :hug::hug: