floridanana
 

New to this site. At my wits end with this Fibro. I have tried Lyrica, gained 24lbs in 6weeks. Dr said he would kill me at that rate. Tried Triliptal, caused severe shortness of breath, he took me off that too. My latest failure was Zonegran. At first it seemed to be working. Six weeks in I had lost 20lbs and the pain was pretty much bearable. Then came the side effects. Numbness in my face, bad taste, bloody nose, and sores in my mouth. Needless to say, I am no longer taking Zonegran either. Right now I am not on anything and the pain is comming back with a vengence. Does anyone have any suggestions? Im about to go off the deep end.:(

Hi Floridanana and welcome to Neuro Talk. Here is the link to our Fibromyalgia Forum...http://neurotalk.psychcentral.com/forum12.html

You'll find good information and support there. I'm glad you've joined. :)

Just wanted to say hi and welcome you to the community...my best friend has fibro, and has some of those issues...hope you find some answers!

Just wanted to say welcome to Neuro Talk! I too know what your saying with fibro....I too am at my wits end. What helps one day doesn't work for the next. For me it is a guessing game....Hope can find answers and great friends as I have...:hug:

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Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help. There are great number of fellow members here to assist as possible.

Again welcome, looking forward to seeing you around.

Darlene:hug:

Welcome to NT

Fibro is miserable. It's hard to get control of.

There's lots of people here who you can share with. They may be able to give you some good pointers to lessen your suffering.

We're here for you.

Welcome. I too suffer from fibro....hugs to you as its not an easy journey.
Lots of great folks here so definately check it all out!

Good luck!:)

Thank you for listening
 

Thank you everyone who replied. It's nice to know i'm not alone. Some days it's hard to cope with the constant pain and depression that come with Fibro. I miss the days when I could chase my grand babies around and just have a normal day. I have read alot of the helpful suggestions mentioned in the links provided. I am going to my neuro next week and I will bring some of the treatments to his attention. Hopefully between all we can come up with something that will work for me. (a full nights sleep without pain would be nice to begin with).:) Thanx Again Darlene AKA: floridanana

Welcome, floridanana! Sorry for your fibro, but glad you found us.

I take LDN (low dose naltrexone) for my Multiple Sclerosis. Fibromyalgia was among the maladies mentioned that it could help.

Best wishes to you in finding something that will help. :hug:

Back at square 1
 

Well I'm back from the Neuro, he says we have to start all over again since I am allergic to the Zonegran. He has started me on a low dose of Topamax. I would love to hear from other folks who have taken, or are taking this drug. He also said Cortisone shots in my spine might help. I am not keen about this idea. (i'm not one for needles). Not only do I suffer from Fibro, but I have a blood clotting disorder called Factor V Leiden. I have blood drawn at least once a month and I dont know how this might affect my clotting problems. I have had 2 Dvt's and 2 Pe's, and I dont want to end up with anymore. I have heard this is a tempoary fix for the pain. I would like some feed back on this procedure also. Thanks Again; Darlene AKA floridanana.:Scratch-Head: