NeuroTalk Support Groups - SAPHO Syndorme

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ekel	03-10-2010 11:29 PM

SAPHO Syndorme

Searching for a facility that is familiar with SAPHO Syndrome. If anyone has been diagnosed with SAPHO please let me know where you are being treated.

Koala77

03-11-2010 03:02 AM

My niece has SAPHO and is suffering quite badly from some of it's symptoms at the moment.

She sees specialist after specialist, each for a different aspect of the disease, but unfortunately we live in Australia so I doubt that we can help you.

Let me know if you think of anything.

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