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-   -   SAPHO Syndorme (https://www.neurotalk.org/general-health-conditions-and-rare-disorders/116443-sapho-syndorme.html)

ekel 03-10-2010 11:29 PM

SAPHO Syndorme
 
Searching for a facility that is familiar with SAPHO Syndrome. If anyone has been diagnosed with SAPHO please let me know where you are being treated.

Koala77 03-11-2010 03:02 AM

My niece has SAPHO and is suffering quite badly from some of it's symptoms at the moment.

She sees specialist after specialist, each for a different aspect of the disease, but unfortunately we live in Australia so I doubt that we can help you.

Let me know if you think of anything.


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