New treatment database has info to help you best manage your PD symptoms
 

To keep abreast of current information about therapies in the development pipeline and clinical trials for Parkinson’s disease, check out the new PD Pipeline Database at db.pdpipeline.org

Here, you will find poweful, innovative features you won't find anywhere else:

• A unique “score card” that shows at a glance the status of each treatment as it moves through the development pipeline, and allows users to “drill down” for more information on any aspect of any treatment or sponsor.

• A filter that scans treatments in the database to find those that address your specific selected symptoms.

Sheryl

The database is amazing
 

i encourage everyone to take a look!!!:grouphug:

Look, I made you a link!
 

You can't afford not to look at this!

No kidding, jump in there and take advantage of a PATIENT-LED, PATIENT-BUILT, PATIENT-MAINTAINED powerhouse of information. This is what is waking up the medical community to how serious we are.

And you'll end up lots better off with your PD if you know more. Don't be put off by the high-falutin' prose. Ask your questions right here, or just start playing with the pretty boxes. :D

http://db.pdpipeline.org/

I salute the workers on this marvelous machine.

Jaye

Well done indeed!!!
 

I was particularly interested in the MitoQ study by Antipodean Pharmaceuticals.

MitoQ

I cannot fathom how much work went into and continues to go into this database. Gathering it alone had to be a monumental task, and assembling it must have been a mind boggling challenge. I applaud everyone involved.

michael b.

Parkinson Pipeline Project
 

Our website is much, much more than just the database...although it is the most awesome part of the website.

Check out the whole website at:
www.pdpipeline.org
where you can link to the database from the homepage.

See you there! The webmaster says thanks for visiting.

Micheal...and anyone else who is interested,

If you would like to be a part of the PPP and help to gather data on therapies, please don't hesitate to "raise your hand" by click on Contact Us from various places in the website.

:Wave-Hello:

please take a look
 

This database is SOOOOOOOOOOO important & informative -- I'm 'bumping' this thread to the top.

:grouphug:

And the contents of the website are equally important.

www.pdpipeline.org

Explanation about Clincial Trials

how recruitment works
what are the risks and benefits to PWPs
informed consent and participant safety

FDA information relative to CTs

Ethical Issues

Advocacy and Education

Glossary of Terms used in CTs

and a lot more!! :cool:

Website News Release...PDF
 

Parkinson's Disease Foundation (PDF)

http://www.pdf.org/news/news.cfm?typ...lectedItem=320


Parkinson's Community News

Launch of PD Pipeline Therapies Database: A Gift to the Parkinson’s Community

(01/31/07) The grassroots Parkinson Pipeline Project has launched a powerful, interactive database to provide easy, public online access to current information about therapies in the pipeline and clinical trials for Parkinson’s disease. Volunteer “trackers” regularly update the PD Pipeline Database (pdpipeline.org), consolidating information from and providing direct links to diverse sources, including pdtrials.org, which features up-to-date information on relevant clinical trials currently enrolling participants in the US.

“Having this comprehensive information at their fingertips empowers patients to be informed consumers, consulting with their doctors about the promise of new and improved therapies and ways to maximize their quality of life,” says Perry Cohen, Director of the Pipeline Project. “For those able to be more involved in advocacy for their own future care, the Pipeline Project offers many opportunities to reinforce their best hopes and maintain their functioning by taking on active roles to enhance the movement of new therapies in the pipeline.”

The PD Pipeline Database boasts several innovative features including:

• A “score card” that shows at a glance the status of each treatment as it moves through the development pipeline, and allows users to “drill down” for more information on any aspect of any treatment or sponsor.
• A filter that scans treatments in the database to find those that address specific selected symptoms.
• A cumulative history of the progress of individual PD treatments through the drug development pipeline.

The database can be accessed through the Pipeline Project's newly improved website (www.pdpipeline.org) featuring expanded, more efficiently organized content, making it easier for visitors to navigate the site and find the information they are seeking.

The Parkinson Pipeline Project is a nationwide network of patient advocates who provide the unique patient perspective to actively promote policies that accelerate the evaluation, approval of safe, effective, and timely new treatments for PD and by education of trial sponsors, clinical researchers, government regulatory agencies and other patients about the process of new therapy development. The software to automate the database was custom developed by Konoso LLC, which worked closely with Pipeline Project volunteers who designed the elements and structure and gather data to continuously update the information. The Pipeline Project acknowledges the Parkinson’s Disease Foundation (PDF) for its financial support for the database through the PDF People with Parkinson’s Clinical Research Advocacy Initiative.

Questions about the PD Pipeline Database can be sent to Linda Herman at ljherman1@juno.com