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Big Sky 03-22-2010 10:19 AM

Neuro augmentation SCS?
 
:confused:
Been searching on Spinal Cord Stimulators with mixed results; some articles rave about them, while others, indicate they're not effective on CRPS and may aggravate the CRPS pain. I'm seeking anyone that can tell me their story and personal experience with a stimulator: how soon after the diagnosis was it placed; how long you have had it in place and what type of pain relief it provides, thanks.

Al

Rrae 03-23-2010 12:20 AM

Hi Big Sky
 
Al :) I'm glad you started a thread and may I say how wonderful you are for doing this on behalf of your son! He's got a gem for a father!

I'm just so sorry he's faced with this battle. And if my memory serves me correctly, you mentioned his injury was job-related?

I hope other's will jump on your thread and give you support and info specific to what your son is facing.

How long ago was his injury and when was he 'officially' diagnosed with CRPS? Is his pain contained to only one part of his body, or has it spread?
Not trying to be 'nosey' :p Just thought it would help to have a little more to go on.

There is such a wide spectrum of scenerios, it's almost impossible to come to any conclusion, even by reading many testimonies....what it will ultimately boil down to is his own personal decision (and hopefully with a Dr who is truly looking out for his best interest, rather than just wanting to make another sale of these very pricey units!!)

Please keep your thread updated so we can be 'with' you as you and your son go thru this

You are in my prayers
Truly Caring
Rae :hug:

Big Sky 03-23-2010 12:21 PM

Quote:

Originally Posted by Rrae (Post 635693)
Al :) I'm glad you started a thread and may I say how wonderful you are for doing this on behalf of your son! He's got a gem for a father!

I'm just so sorry he's faced with this battle. And if my memory serves me correctly, you mentioned his injury was job-related?

I hope other's will jump on your thread and give you support and info specific to what your son is facing.

How long ago was his injury and when was he 'officially' diagnosed with CRPS? Is his pain contained to only one part of his body, or has it spread?
Not trying to be 'nosey' :p Just thought it would help to have a little more to go on.

There is such a wide spectrum of scenerios, it's almost impossible to come to any conclusion, even by reading many testimonies....what it will ultimately boil down to is his own personal decision (and hopefully with a Dr who is truly looking out for his best interest, rather than just wanting to make another sale of these very pricey units!!)

Please keep your thread updated so we can be 'with' you as you and your son go thru this

You are in my prayers
Truly Caring
Rae :hug:

:mfr_wha:Well I tried to post earlier and for some reason it didn't show (perhaps it's my dialup internet).
This injury is job related and occurred in June 08. He has seen several doctors; his primary physician first felt back in August of 08 that he had CRPS. Back then he wasn't the primary and Workman's Comp was dragging their feet. The pain was first limited to the right arm and shoulder, however, migrated to his right leg and foot after the FCE was conducted. He has already had two IME's, now a third is scheduled for early April; unlike the two previous ones, which were made up of only one doctor, this panel will have a total of four, lasting two days. I feel this is an exit strategy for the insurance carrier but that's my opinion.
Thanks for your words and concerns.

:) Al

Rrae 03-23-2010 12:38 PM

Quote:

Originally Posted by Big Sky (Post 635886)
:mfr_wha:Well I tried to post earlier and for some reason it didn't show (perhaps it's my dialup internet). Al

Well shucks!! :( How frustrating!
That happened to me before. I realized that when I was trying to post something that ended up taking some time,, I would get 'booted' off......so (in case you didn't already know this), I always put a little 'check' mark in the box that says 'Remember Me" when you log on......maybe that'll help?

I'll be in touch soon, I've got to go to an appointment.

There is a forum here specific to "Work Comp" information.
You'll find it in the main menu
Maybe you'll be able to gather some valuable info there.

I hope they (the Insurance) isn't dragging their feet hoping the 'statute of limitations' will expire so they'll be able to say
....'sorry, too late'....:confused:


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