Well, RATS
 

We left home at 5:35 AM .....Today was the routine, every 3 months, check-up brain MRI and meeting with the surgeon who removed the tumor in Feb. The MRI showed everything was 100% clean and clear but the surgeon was alarmed because of the seizures I've had the last 2 months and my neuro is on leave -- she had her first baby a month or 2 ago.
We told him about my trouble with short term memory and word finding -- that's worse than seizures right now.

This is all too long to tell - I could not believe how long we talked. I couldn't believe what we talked about. I can't believe any of this.

At 4:30 this afternoon my neuro's nurse phoned - good grief - my neuro (on leave), another neuro and the surgeon had arranged a conference call. I was to increase another med tonight, expect another phone call within 2 days to arrange another hospital stay, more MRI, PET, VEEG, maybe WADA, neuropsych.

I don't know what's happening. I don't know what to do.

((((((Jingle)))))))

:hug:

i know how hard the wating is.

it is good that your dr's are communicating with eachother and you. but ultimatly the decision is up to you. anything we can do..hugs...research the options they give..anything for our jingle. http://neurotalk.psychcentral.com/im...onsb/heart.gif

Ooohhh long night. We lost power again. We were without power for 3 days and nights last week. How it hurt to wake up without it tonight - but we were out only 3 1/2 hours.

Thanks you Julie and Curious for listening to me - you have no idea at all how much that means to me.

I am dealing with some great doctors and they do reiterate all my options - even saying "no" and walking out - over and over. I'm told what the possibilities of dying during surgery are and things like that. I look at a break-apart model of the brain and drawings until I get dizzy.
I know I can take the weeks of tests and still say, "Thanks but I don't want surgery".

I know if I have the surgery that may relieve the seizures. my short term memory and word finding ability will be even more damaged.

I suppose the surgery I really need is one that will control this talking too much.