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-   -   referral nj (https://www.neurotalk.org/myasthenia-gravis/119175-referral-nj.html)

JGenovaGoldstein 04-12-2010 01:53 PM

referral nj
 
My friend is newly diagnosed, MG associated with a myeloma antibody (which she has had for a long time. MG was a surprise.) We need a referral to a local (NJ or thereabouts) MG center of excellence, if one exists. Can anyone help us, please? Thank you. And forgive me if I challenge the etiquette - I have never participated in a forum like this before.

Stellatum 04-12-2010 03:28 PM

Hi. You can write to the Myasthenia Gravis Foundation to ask for names of specialists in your area: http://www.myasthenia.org/ . Just click on the "contact us" tab.

Abby

iwasanurse 04-12-2010 04:56 PM

Quote:

Originally Posted by JGenovaGoldstein (Post 643504)
My friend is newly diagnosed, MG associated with a myeloma antibody (which she has had for a long time. MG was a surprise.) We need a referral to a local (NJ or thereabouts) MG center of excellence, if one exists. Can anyone help us, please? Thank you. And forgive me if I challenge the etiquette - I have never participated in a forum like this before.

I also have MG and the Multiple Myeloma antibody(IgA). Good Luck and Best Wishes.:hug:

tysondouglass 04-12-2010 10:16 PM

Johns hopkins
 
I know that Johns Hopkins is quite close to NJ, and they are a great place for MG, one of the best in the country I believe, yet i dont know the names, i could get them quite easily I think if the myasthenia organization cannot produce them. I am going to a college next year near there, and am going to be followed by them.

Hope it works out for your friend


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