New member hello!
 

Hello everyone and thank you!
I just wanted to say how happy I am to find this community and am overwhelmed with the information I have learned from everyone's experiences.
I am not one for chat rooms (which I know this isn't) and when researching specific info on my PN came across this link. Once I started reading thru the threads I was impressed with the caring and support and said to myself that this is a place I would like to be apart of. I have always gone it alone with everything that I've been thru and still going thru and it seems now that I have been missing out on a good thing!

Thanks again to everyone and in the future maybe I can share some of my experiences with you! Below are some of my accomplishments.

Jonathan

Testicular Cancer survivor x 2
Cervical Spondylosis - disks replaced with titanium, fusion of C5-6
Onset of type ll diabetes, now insulin dependent
Severe PN of feet due to chemo and diabetes (double whammy)

"Any transition serious enough to alter your definition of self will require not just small adjustments in your way of living and thinking but a full-on metamorphosis".

Martha Beck

Welcome Jonathan
 

You certainly have found a place that is superior in caring and sharing. We all have different experiences, but by sharing them, we help each other in many, many ways. Glad to have you aboard!
:welcome_sign:

Indeed a warm and hearty welcome from me too!!!

You get lots of hugs, fuzzies and I even supply a laugh or two (or three) around here.

So hop aboard and read and learn and join in.

Regards.

Melody

Welcome Johathan, glad to have you onboard :)

Welcome to the forum, we all learn from each other!!!

Hi Jonathan--
 

--and yes, you're definitely in a lousy situation, between diabetes and chemo, both well known neuropathy causes.

The ray of hope you may have is that in both cases, time, exercise, weight loss, circulation improvement, good supplementation, etc., can help considerably. Diabetic neuropathy can improve if the ischemic damage is stopped through good blood sugar control, and chemo-induced neuropathy often improves once chemo is finished. Problem is, nerve improvement takes a long time--a VERY long time--MUCH longer than it takes to damage them. But, if one is experiencing improvement, it may continue for years--not dramatically, but in tiny increments that may only be noticed in a long term prespective, and with a lot of daily ups and downs. (A number of people keep symptoms diaries, and report that they only notice the improvement when looking over months worth of entries or longer.)

Can you tell us what type of neuropathy symptoms meds (anti-convulsants, anti-depresssants, opiods or analogues) and/or supplements you're on, and more about the timeline of your symptoms and conditions? Many will make suggestions, I'm sure.

hi jonathon and welcome to NeuroTalk.

i'm glad you found us. :)

Hi Jonathan and Welcome to NeuroTalk!

My husband is a testicular cancer survivor (both sides), and he also has PN as a result of the chemo...

Also, he is considered "pre-diabetic" at this point. He does not use insulin (yet) but he does have to watch his diet.

I'm glad you found us here at Neurotalk! If you ever want to chat with another TC survivor just let me know and I'll give you my husband's email address.

Take care,
Liz

Add me to it
 

Hi Jonathan,
Glad you found us and yes...this is a wonderful caring group of people. Not only that, the combination medical and research knowledge is superior. Please post as Glenntaj says and let us know what type of neuropathy symptoms meds (anti-convulsants, anti-depresssants, opiods or analogues) and/or supplements you're on, and more about the timeline of your symptoms and conditions?

We may have suggestions or can point you to some research or help. You in turn may help some of us.

Glad to have you!
Billye

Jonathan - welcome....And ....
 

I'm glad you found us! I know of many who have PN from chemo...I managed to 'escape' the chemo w/my own cancer, BUT I'd the PN/CIDP prior to finding the cancer. I truly believe that I'd become more consistent in seeing the different 'regular' docs for annual check-ups because of the PN, and, that keeping a regular schedule was what got an early diagnosis for me! I have an idea of what you've been thru and hope you can share your learnings with us...Not a vacation for sure.

Each of us tries to bring what we have learned to this place...and feel free to ask any question at all! There are no silly questions....I for one have asked more than a few!

What meds are you on? How are docs treating you for the neuropathy? I cannot underscore the importance of sharing what is working or NOT...most often for some there are more NOTs that yes'es. Do you see a neuro? Really, we're not trying to be nosy per-se, just getting a handle of your situation, your meds, their s/e's etc and what we've learned and can share our experiences about them with you - if there are some parrallels.

Please don't be shy! I for one believe there are lots of folks who've had chemo out there who could join and learn as well. - super good thoughts for now - j