VEEG testing
 

:eek: I had my app. at Dartmouth-Hitchcock yesterday and will be going for VEEG monitoring on Mon. Dr. said it will be a 5-7 day stay. Said it is unusual to start having epileptic seizures at my age (47). I have heard from other people though going through same thing. I will stock up on books and maybe a puzzle or two to keep busy. This all rides on ins. co. agreeing that this procedure is necessary.

Garney

Good luck with insurance, Garney :)

I started having seizures probably when I was 45 but was diagnosed when I was 46 and had my first VEEG in Oct., 2005.

Take some good books and maybe some needle work (do you do any needle work?) puzzle books - something to do with your hands in bed - something to keep you occupied. Oh - it's BORING. And you'll have hospital food :eek:

Will they let you have have a lap top? What a blessing that would be! Good luck -- we'll be thinking about you and wishing you the best.

Garney I am so glad that you get to have this procedure. Ellie just went through it very recently so you might want to read up on what she posted. Like Jingle said, bring as much stuff as you can to occupy yourself. Find one of those things at Bed,Bath and Beyond to hang off your bed so you can easily reach everything that you want. A laptop is great too!

Please keep us in the know about what is going on. We all have our fingers crossed for you.

Hi Garney,
I wish you the best of luck with the veeg. I had one done and my neurosurgeon put the electrodes directly on my brain it was amazing what they could find in detail with this test. I found reading doing puzzles in books, and doing a lot of writing to friends made the time go faster.
You might want to get it in writing from your ins. co. that they will cover you 100% before you have the test done. That way they can't come back and say we didn't approve of the test being done. I've done that each time I had surgery just to play it safe.
Tell your Dr. to flash different color strobe lights one at a time to see if certain colors maybe triggering your sz. There is the possibility that it maybe all hormone related.
May God Bless You and I wish you only the best.

Sue

Veeg
 

Porkette,
Thank you for the info. I am hoping that they find something. I didn't even think hormones, but I have been having periods of hot flashes and waking up with my pj's wet. I will mention this to Dr. Actually I will right this down to mention to him, because I forget what I want to tell them about when I have my app.:confused:


Garney
(Cathy)

Hi Garney,
I know everyone is different but my epi told me that the sz. could increase or decrease for me when I started to go through menopause. I found that my sz. increased greatly do to hormones changing so much and I ask myself if that's the reason why I had a TC sz. this past Jan. I've always had absence and cp sz. until I started going through menopause.
In regards to your veeg your Dr. may cut your AED's back while your having the test done to help cause a sz. My Dr. had me drinking diet soda and eating potato chips and slices of pepperoni because these were the foods and beverages that caused me to have sz. I wish you the best of luck and May God Bless You!

Sue

When I was having my VEEG they reduced my meds very much, very quickly.

Because my sz always came in "timed" clusters and I had no triggers I told them that would have no seizures. My epi-neuro said that every one told her they would have no seizures.

When the tech was attaching the thingys to my head I told him about having timed clusters and no triggers and knowing I would have no sz. He said, "Everyone says they will have no seizures."
I had 2 seizures within 4 days -:p - just what they wanted.

Waiting to hear about Veeg today
 

Jingle,

i am with you on that one. I too am afaid that I will not have any activity while in hosp. I am hoping for at least one seizure. will let everyone know outcome. Am still waiting to hear if def. going in this am. If not, then tomorrow.:(

Garney

(((Cathy))) I understand how it feels to sit there and WAIT - how awful.
I sure hope you get into that hospital - 100% insured - that waiting can end and you (oh, how awful to say) have seizures. :eek:
God bless you.

VEEG No Go
 

jingle,

Well here I still sit at home at 2:30. I am told that the dr. did not sent report until 11:45 today!!! I called admit, and they said They could noy do anything without ok from ins. The bed that was reserved for me is now occupied, but they think the person is leaving later today. Unfortunatley I would have to be there by 4:00pm in order to get hooked up. Even if ins. ok's this afternoon, we live 2 hrs. away.
Dr. Thadanis nurse asked if I was getting anxious or upset by all this, and I said of couse I am. She told me that I can't be doing that because not a good thing. (could bring on seizure) Well at this point I will hope for tomorrow, and that a bed will be available.
Keep you posted.:(

Garney
(Cathy)